coccyx pain

[dansybelle]

hello,

I’m having issues with coccyx pain and am wondering whether it’s another exciting (😒) symptom of FA.

I’m still ambulatory so not a wheelchair user but am having the problem when sitting on an upright chair- so I’m avoiding doing that as much as I can but it’s not always possible. I bought a special coccyx relief cushion for my office chair but if anything it has made it worse.

My GP has just given me loads of painkillers, which I am reluctant to take. She also suggested acupuncture.

Has anyone had this problem and what helped?

Thanks 😊

[wobblybee]

🤔 If you’re on Facebook..you could ask this on one of the Friedreich Support Groups

🙂This link might be helpful

nhs.uk/conditions/tailbone-...

[MSW_91]

Hi there

I hope you are well.

I experience coccyx pain too. I also have late onset FA.

I’ve found that baclofen has helped to ease the pain (I take 1x 10mg tablet at night). I also do a cobra stretch every morning.

I work in a desk based job and had a lot of discomfort when sitting for prolonged periods. I now use a sit-stand desk which has helped to reduce stiffness and muscle pain.

I hope that’s useful!

Best wishes

Matt

[dansybelle in reply to MSW_91]

Thanks for replying Matt. Does your dr think it’s related to FA? I am late onset too but not sure how I’d cope with standing a lot! I work from home so am working from bed or sofa atm- not ideal! I have an app booked at the drs in a couple of weeks so will mention bacolfen. I was wondering about requesting and MRI? Have you had one? Have you got a link to the stretch you do?

So many questions! 🤔

Cheers

Danielle

[MSW_91 in reply to dansybelle]

Hi Danielle

I haven’t asked if the coccyx pain is linked to FA. I just assumed it is as my discomfort started alongside my other FA symptoms. It isn’t debilitating for me so I’ve just learnt how to alleviate my discomfort and manage it

And yes, I’ve had two MRI scans (brain and spine) but these were a few years ago during my journey towards a diagnosis. My first was in 2016, second in 2020. Since FA was confirmed through a genetic test I haven’t been offered any further MRI scans.

And sure. Yoga with Adrienne was recommended to me by a friend who is a personal trainer. There are lots of different videos on YouTube. Here is the cobra one: youtu.be/n6jrC6WeF84?si=oJz...(Not working as expected?)

Just to add this one works for me but you may find something that’s a better fit for you. I attend a weekly stretch/yoga class so have picked up various stretches from the instructor. Some suit me and I’ve incorporated them into my daily stretch routine, others don’t so I don’t do them. Have you seen a physiotherapist? They might have some good suggestions.

If you have any other queries do let me know.

All the best

Matt

[medea]

I've been in a wheelchair with FA for many years and never had coccyx pan. I don't think it' s directly linked - perhaps indirectly. Anyway there are pleny more exciting symptoms to look forward to! ! Sorry I''ve no practical help.