Lack of excitement over the Reata Pharmaceutical... - Ataxia UK

Ataxia UK

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Lack of excitement over the Reata Pharmaceuticals' Omaveloxolone news

C2a2o2 profile image
4 Replies

I know most of us can't take it and it's only in the US right now but I think this is a serious step in the right direction. It's great news for us all.

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C2a2o2 profile image
C2a2o2
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4 Replies
PatsyIpswich profile image
PatsyIpswich

I know what you mean. My sister-in-law has MS and and pleaded with GP to get the new drug but but it didn't agree with her and had to stop taking it. X

Ostap profile image
Ostap

I’m excited but much of that is driven by desperation. I haven’t been able to find out a. what the drug does b. would you need a genetic confirmation of Friedreichs Ataxia to be eligible for use?

chelpet profile image
chelpet

I’m still not holding my breath!

chelpet

ww-wibblywobbly profile image
ww-wibblywobbly

I've been tested for Friedrich's ataxia, so I think it's not for me. But it's a really good start and hopefully they'll be something for all of us soon. I'm glad that the people with Friedreich's can have a treatment xx

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