BPPV a form of vertigo

[Telegraphist]

Had a couple of incidents of this, involving a sudden change of head position. Does anyone see a connection with cerebellar ataxia?

[wobblybee]

🙂 I’ve been specifically tested for BPPV (Benign Paroxysmal Posterior Vertigo)..this is in addition to dizziness linked to ataxia. I’d become dizzy just turning over in bed.

It’s possible to have therapy..this is called the Epley Manoeuvre ..But repeated attempts over the years have failed to help in my case. It’s known that head movements (back and forth or up and down) do cause dizziness ..with any type of ataxia.

[pinjem]

Yes, I had it after a fall and it took a long time and an unusual manoeuvre (after lots of Epley manoeuvres that helped for a while). I learned how to do the Epley myself, it can be done in some surgeries or at an audiology clinic. Even though I am pretty clear of BPPV, going over paving in streets in my wheelchair starts it up again for a while.

[glenandgerry]

I had BPPV after my second dose of Covid vaccine. Dr tried the Epley Manoeuvre but it didn't work. I then tried it myself at home and it worked. Sometimes when I turn on the mat during Pilates I get a slight spell of it. I don't have Ataxia though, my husband has Parkinson's with Ataxia symptoms.

[ddmagee1]

I believe that has happened to me, too, and I could imagine, it could be part of my cerebellar ataxia problem!

[Buffergirl]

Also diagnosed with BPPV (and Labyrinthitis) after a fall backwards on to my head. I too was given the Epley manoeuvre (twice) and experienced some improvements. However, despite my neurologist being insistent that this fall didn't lead to my present Cerebellar Ataxia it is more than a coincidence that my symptoms of imbalance and mobility issues took off after this. I cannot be absolutely confident that the condition wasn't in its nascent form as I had 2 years previously been involved in a serious car accident in which my back was broken and obviously whiplash sustained. But the complete ruling out of trauma-related CA in favour of genetic origin is, in my view, medically blinkered and bizarre!