Hello and thank you for letting me join the group.
I had my second Astrazenica vaccine may 2021. Shorlty afterwards I showed signs of loss of balance
and an excruiating pain in my neck.
I had to wait for a doctors appointment. When I eventually got to see my G.P I was rushed to hospital and diagnosed with a posterior stroke, Cerebal Attaxia and now FND.
I was in good health before all this. My consultants seem to be baffled and I am now told it could be in my head???
After 13 months of being off work, they have now decided to test for Parkinson's.
My loss of balance is not in my head it is dangerous.
I have filled in the yellow card and I am in constant contact with the Astrazenica team.
I can't get answers to see if there is a connection. I no longer have a life outside of my house as I can't go out on my own safely.
Why are answers so hard to come by?
I feel like a lab rat for the amount of tests and scans that I've had.
Whenever I ask if this is related to the vaccine, I am either told an enphatic NO or I'm ignored.
Can anyone help me please?
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Daunted1
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I am totally sick and tired of supposedly qualified physician’s are telling patients “it’s all in their head”, and making their patients feel bad about themselves, some feeling that they are mentally deficient. In my opinion ‘it’s all in your head’ should be removed from all Doctor’s vocabulary! For years, I had SEVERAL Docs tell me that my clumsiness was all in my head. Finally, when I was in my 40’s a smart Doc referred me to a neurologist, and I was subsequently referred to a neurosurgeon, with excellent credentials! Both Docs are Harvard Medical School Graduates! They put me through numerous in hospital tests for over a week, including MRI, and invasive arterial studies, of the brain! The conclusion was that an arterial malformation was found, in the center of my brain, at the cerebellum, brain stem angle. An enlargement of an artery was also found. Possibly, this was a birth defect. The neurosurgeon, Dr. Robert White, a world famous Doctor, and head of the Department of Neurosurgery, at Case Western Reserve University, stated that an operation would be incredibly risky, in the center of the brain, so he deemed it inoperable. So, I was diagnosed with Cerebellar Ataxia, and have been on blood pressure medicines, for a number of years, as a result. Then, to add insult to injury, when I got older, and had a bad fall, when I seemed to freeze in my tracks, resulting in blunt force trauma, of the head, along with a concussion, two black eyes, and several other injuries, at the emergency room, I was given a brain scan, and several other tests, including a heart test. In spite of all that, the Doc said they couldn’t find a caus, for such a serious fall. Two years later, I had a serious tonic/clonic series of seizures, when I was traveling, outside of the country. In spite of several days of hospital tests, a cause was not found. After several years, of my showing my Family Doctor evidence of Cogwheel Rigidity, in all 4 limbs, where he told me that he didn’t know a cause, implying that it might be in my head, my daughter, who is a certified BSN, had enough of the BS, and moved us from our town, to a major city, with a major medical regional center, where she set up an appt. with an Internist. When I showed the Internist my cogwheel rigidity, and resting tremor, he wouldn’t let me leave the office, until he got hold of a neurologist, for an appointment. The next day, I saw the neurologist, who put me on Sinemet, where it helped my symptoms, and I was, consequently, diagnosed, with an advanced case of Parkinson’s Disease-Stage3. This was about 6 years ago! Currently, I have great difficulty walking, with balance, swallowing, constipation, heart rate irregularities, hot/cold difficulties, peripheral neuropathy, with numbness in all extremities, plus hand tremors, etc. So, the bottom line, is that, perhaps, if a Doctor had stopped implying that my symptoms were ‘all in my head’, and done his job, by referring me to a neurologist, then I might have gotten on Sinemet therapy, earlier, where the PD may not have advanced, to the point, of where it is today! That’s my story! Sorry for the long diatribe, but, if my story helps somebody, so that they can get help, in getting properly diagnosed, it will be worth my efforts, at awareness of Physician’s claiming to some patients, that their symptoms, are ‘all in their head’! Daunted1 - Please continue to seek answers for your symptoms, and don’t give up, would be my advice to you! Good luck! Have patience!
I am so sorry to hear your story. I do think a lot of doctors and consultants are very blinkered in their thinking and don't consider what the patient has to say as we're not qualified to do so. A bit more listening and consideration would go a long way, after all we all know own body best. I will indeed keep fighting for answers. Many thanks for your reply and I wish you well for your future. Stay safe
Thanks! You are correct! Listening to patients, who know their bodies best, is essential for good physician care. I will leave you with one last thought! My son-in law, is a practicing Hospitalist physician, who, over the last several years, has been in charge of the COVID patient care unit, at our local regional hospital.A number of years ago, when he graduated from Ohio State University Medical School, my advice to him was, ‘Listen to your patients! They know best the workings of their bodies, and whether they sense a problem, like pain, etc., where you can investigate, the cause of symptoms!’ Wishing you the best! Stay safe!
I had the AstraZeneca vaccination and was fine. I’m sorry you have gone through this and I can relate, as aged 42 I was absolutely in good health. I was on holiday in Italy got bitten 33 times in two hours between my knees and ankles, I am allergic and was painfully swollen, 1 month after I was slurring speech and 1 month after that I had my first mri saying cerebral atrophy, coincidence I don’t think so, but doctors wouldn’t and still don’t listen. 3 years after my symptoms were so bad I m in a wheelchair and housebound, my husband is now my carer. My life is horrible and I’m still young. Thank fully one doctor has put my on immunosuppressants which seems to have slowed progression but the damage done is irreversible, so my advice would be to persist and keep telling doctors your story, you never know one might listen and it might save any progression or irreversible damage.
i am so sorry to hear of your distress. i am still fighting, it's tiring as no one seems to want to listen. my daughter (a nurse) has found a homeopathic consultant who seems to be listening and believing in me. she has looked at all my records and all the evidence and she is cinvinced this is caused from the az vaccine. sadly, even though she has 25 years experience in her field, she is not recognised by the medical profession. from talking to her though she is very determined and is willing to help me to get to the bottom of all this and fingers crossed try to undo all the damage so i can have my life back. my husband is my rock and is everything for me even though he has to go to work. there does seem to be a faint light at the end of the very long tunnel but i am hopeful. i wish you well with your recovery.
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