Has anyone ever tried this?: bio-japan.net... - Ataxia UK

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Has anyone ever tried this?

mpagganwala profile image
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bio-japan.net/taltirelin-OD...

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mpagganwala profile image
mpagganwala
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wobblybee profile image
wobblybee

This drug may not have approval either in the US, or UK.

ClinicalTrials.gov Identifier: NCT04107740

Recruitment Status : Recruiting

First Posted : September 27, 2019

Last Update Posted : October 2, 2019

See Contacts and Locations

So far no results have been posted.

sonofapeter profile image
sonofapeter

I've been on it for roughly 1 year now. I am unsure if it truly is doing anything? Could simply be a placebo effect. Every time I stop, I feel more disorientated so I jump back on it, but I don't feel like its helping as much when I first started. It definitely has not stopped the progression. Maybe, its slowed it down? I finally told a new neuro I saw because I have always been scared that if someone finds out, then it won't be available anymore? If you live in a country that allows shipping, this is another link-

mimaki-family-japan.com/ite...

It's not cheap, for something that may or may not work. Choose accordingly. :)

Best.

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