Neck Spasms = Cervical Dystonia?: Hi everyone. I... - Ataxia UK

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Neck Spasms = Cervical Dystonia?

Pie1 profile image
Pie1
11 Replies

Hi everyone.

I have SCA3 and recently started experiencing neck spasms. They happen out of the blue and often after I have turned my head left or right. Is this cervical dystonia and is there anything I can do to prevent it? Also, is this a symptom of SCA3?

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Pie1 profile image
Pie1
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11 Replies
PatsyIpswich profile image
PatsyIpswich

a lady in our support group had this and it was relieved with botox injections.

Pie1 profile image
Pie1 in reply to PatsyIpswich

Thank you Patsy!

suzie44na profile image
suzie44na

Hi, I have dystonia and had Botox injections for this in my neck, it does help for up to three months. It does sound like dystonia and it can be secondary, mine is. Ask your neurologist if you have one. All the best,

Suzie

Pie1 profile image
Pie1 in reply to suzie44na

Hi Suzie.

Thank you for your response. I will definitely ask my neurologist when I see him next.

I used to get them multiple times a day but once I started taking magnesium bisglycinate and now I get them maybe once a week.

Pie1 profile image
Pie1 in reply to

Can I get magnesium bisglycinate from the chemist? or will I need a prescription? Do you have any other muscle cramps?

in reply to Pie1

It’s sold with the supplements. Magnesium Citrate absorbs at the same rate so that’s an option too. Citrate also soften stools so pick which one suits your needs in that regard.

ninotchka profile image
ninotchka in reply to

Magnesium glycinate is preferred by doctors over other forms of magnesium, such as citrate or maleate. It doesn't soften your stool as much either. Believe me, you do NOT want to ingest too much magnesium! I did and it was not a pretty picture.

alisonjayne79 profile image
alisonjayne79

Omg, I experience this too. I have ataxic celebral palsy but I thought my horrendous neck spasms were down to me having fibromyalgia

Pie1 profile image
Pie1 in reply to alisonjayne79

Hi Alison.

I get quite a fright when it happens as it catches me out the blue. Do yours happen the same way? It almost feels like the muscles are twisting over.

ninotchka profile image
ninotchka

Magnesium glycinate is preferred by doctors over other forms of magnesium, such as citrate or maleate. It doesn't soften your stool as much either. Believe me, you do NOT want to ingest too much magnesium! I did and it was not a pretty picture.

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