This is just information: rarediseases.org/rare... - Ataxia UK
This is just information
6 Replies
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Very informative Julia, but too much to read in one go..... but thank you my lovely. 😀😘
in reply to Veteran250
You welcome it is alot to read, those who have no help may read something beneficial. I thought I was done searching after years of help, I'm not at least not now.
Nice one, thank you. 😀
in reply to KiwiBob
You welcome it's to hard on those with Ataxia help is needed forever.
Very interesting - thank you x
You welcome Litty, when I seen this I thought about the years It took me to get help. So putting information up might be a good thing, because I still have a ways to go.
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I just did the Ataxia survey and it seems that is where I am at, 78% of us in the same boat it seems
Just get on with life
I was diagnosed with Genetic Cerebellar Ataxia about 7 /8 years ago.
My job involved a lot of...