Hi all Ataxia's, greetings from Scotland ,Hope you are all having a good day !!!
I just would like some feedback about my Balance and walking, I have had Balance problems for years, but just the last year, I have not been able to walk, not the way I was walking before, It is just the past year that feelings in my feet and legs became numb , balance and falling became the norm !!! then it was noticed that I was walking with my legs apart !!! and slower , shuffling , then Neurologist has Diagnosed me with Ataxia SCA 2, I have Physio coming to give me exercises, Balance ones, it is not easy, I fear I shall come to the stage of not being able to walk, Neurologist said I would end up in wheelchair, My daughter pushes me in a wheelchair when she has to take me out, Does balance get any better ? is Physio worth the pain , they are lovely girls, and I know they do what they do for my good. what are other's experiences with Balance & walking, how fast did your symptoms progress ? Thanks again, I am sure you must all be getting fed up with my posts--- same old story and fear
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lottiejemma
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Hi, hope you've also got the sun shining this morning. As both Alison and Cocoa both say physio is definitely worth the effort, as we all know it is very tiring but will slowly make a difference. I find it difficult to remain motivated once the physio stops seeing me. Last year I had intensive read at Queen Elizabeth Hospital in Glasgow. It was a really tiring time but after the 4 weeks there was a definite improvement in my standing time. I find getting out on my mobility scooter to get some fresh air and saying hello to people on the street can help lift my mood.
Hi Gerry, Sorry I can't remember the name of the dead consultant at WEB but he has based in the PDRU (physically disabled rehabilitation unit). I was referred by my Neurologist who is based in Hairmyers Hospital East Kilbride. If I can find the consultant name I'll post it.
On the contrary, it’s important that you express your fears and concerns, about Ataxia, in this forum, so that we can all help and support each other! I’ve been concerned, myself, because I have some numbness in feet, that seems to gradually getting worse, and my balance is way off, and has been, most of my life. It seems worse, now that I’m older. I’ve had several falls, from this last winter, which was a bad winter, with lots of snow, and ice, and cold temperatures. I couldn’t walk a straight line, if my life depended on it! Some day, I’d like to visit Scotland! Cheers to you!
Hi, when I went to physio I was encouraged that a lot of the exercises she gave me were ones I did already in yoga and tai chi. So an hour a week at yoga class and an hour at tai chi is like 2 hrs of physio and you meet other people so it's more fun than exercising at home. Tai chi is good for moving balance and I recommend it.
Strengthening exercises are really important. They probably won’t help improve your balance but can help slow the progression of symptoms. Also, it’s very important to strengthen your arms because you will be relying on them more and more as your balance fails.
Fellow SCa2 here, and re-iterating how important physio is, I'm doing neurophysio to work on weaknesses to help my balance, as well as cross crawl exercise patterns and seeing a kinesiologist to balance internal health!
It can be exhausting, but it is a daily fight, and I do feel my strength and balance is improving but there are some good days and bad, getting enough sleep I find is vital!
You've just to keep fighting the fight & feed your body with nourishing foods! love Karen x
What sort of food ? --- I am vegetarian , but occasionally have a bit if Salmon, or a bit of chicken , --- chicken only if I know it is from a good farm and organic free-range, fussy me, I Love animals, and don't like the thought if how they are killed and eaten for greed . my vegetarian food is wonderful, my daughter does all the cooking, and oh Boy , I tell you , she is the best cook ever L O L
Hi Lottie, I follow Dr.Wahls protocol, I figure if she has healed herself from MS, it has to do the Ataxia good.....3 months in, and Im sleeping better, more energy, no brain fog and Im finally dampening my inner sugar addict! Here is the link, the book is brilliat....she has suggestions for veggies in there too, in addition read 'Grain Brain' by DR Perlmutter, great advice for nourishing the nugget
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