Cerebella Atrophy

[Jacqui-A]

I have recently been diagnosed with Cerebella Atrophy, I am reaching out for your support.

[BlanketTime1]

welcome!

[Meekster]

Welcome Maridale! What a Cute picture! I’m glad you found this site. I’m sure you’ll find it helpfull and usefull as many of us have. Finding out you have ataxia can be overwhelming. Please tell us more about yourself.

[Jacqui-A in reply to Meekster]

I was diagnosed two weeks ago but went to GP 3 or 4 years ago with balance issues and she dismissed it. I saw another GP last year and she dismissed it. I don't get on with the walking sticks I had issued me by the physio, my coordination isn't that good, it is so embarrassing to go out and I feel I'm fall.

Going to

[ConfusedAtaxian in reply to Jacqui-A]

Get a good walker, Maridale x

[Jacqui-A in reply to ConfusedAtaxian]

Yes I have bought one thanks for that

[Happyfacexx]

Welcome to our group 💐

[Jacqui-A in reply to Happyfacexx]

Thank you!

[margieboo22]

Hi,I was told ataxia about 3months ago,so much to take in! Xx

[Jacqui-A in reply to margieboo22]

I had never heard of it before, have seen the physio and he's given me exercises to do hope they keep me mobile. I was distraught and in floods of tiers when I first learned fearing what's round the corner.

[margieboo22 in reply to Jacqui-A]

I know,I already use a wheelchair and sticks, what's next? Xx

[suzie44na]

Hi, I have brain atrophy too, but I have no positive diagnosis, which is most stressful, as I am always hoping for a diagnosis. Sometimes you do just need someone to talk to about your problems, so this is a helpful site to ask anything you like and feel less lonely. Welcome and wishing you all the best

Suzie

[Jacqui-A in reply to suzie44na]

Hi Suzie

After two visits to two different doctors I eventually found a GP who took me seriously and started by seeing an ENT specialist who recommended an MRI scan. Of course there was nothing wrong with my ears, but when I saw the neurologist He was able to diagnose me so ask for an MRI scan

[suzie44na in reply to Jacqui-A]

Hi Maridale, I have had MRI scans, my neurologist told me I had brain atrophy on my scan,but the report never said this

Suzie

[swtb]

Welcome Maridale. You hv come to the right place for support, important info, and understanding. You are not alone. I too was diagnosed wi Cerebellar Ataxia and i am learning so much more from this platform than any GP or even my 2 neurologists, who basically said good luck. Glad yu are here.

[Jacqui-A in reply to swtb]

Thank you, when were you diagnosed, can you still use your legs?

[Jacqui-A in reply to Jacqui-A]

Yes I can still use my legs, not well though, I have a mobility scooter for walking the dogs and I find one walking stick is better than two because of the lack of coordination.