Cerebellum atrophy

[Chunguz]

My life z such a mess I can't seem to do anything right #sofustrating #sad😟

[ddmagee1]

So sorry to hear that!!! I have Cerebellar Ataxia and am very clumsy, so I often feel that I can't do anything right either. Then, I also have Parkinson's Disease, which makes me even more clumsy! One thing that really helps though, is my support dog, Corky! He understands, and loves me the same, even if sometimes, maybe, I think people don't! Do you have a support pet? That might help. It's really hard to find medicine, that can help with some of the symptoms and problems of dealing with Cerebellum Ataxia. Wishing you a bit of Irish luck.

[Chunguz in reply to ddmagee1]

Thanx and no I don't have a support pet

[ddmagee1 in reply to Chunguz]

Take care!

[ConfusedAtaxian in reply to ddmagee1]

I have Cerebellar Ataxia and tell myself I’m not clumsy, it’s the Ataxia (then usually drop something or bump into something). Know what I do? Laugh. I must look pretty daft! Don’t give in. Take your time. Laugh at yourself. Take care 🤗

[C2a2o2]

I'm so sorry that you having such a hard time. Have you been to see your doctor? They might be able to refer you to see a counselor and/or a neuro-physio who can come to your home and show you some exercises to help. My area has a neuro team including group counselling, physio and speech therapy and I found it really helpful.

[Capricorn9157]

Hi Chunguz. Sad to hear you feel so down. When first diagnosed I think everyone feels the same. May not sound much at the moment, but things will improve. I came on here and received lots of comfort and support from, to me, complete strangers. Don't let it get you down, if you need to speak to someone then this is the place to be. Lots of experienced people here, both Ataxians and carers.

Just a few thoughts which may help you. Have you joined AtaxiaUK ataxia.org.uk/ ? They have lots of information, and a helpdesk, which may be of help. Also, there are local support groups for Ataxians and carers to join (AtaxiaUK can help you locate your nearest one).

Never think you can't do anything right please. Everything you do is right, maybe you can't do things as before but just take your time, learn your limitations and not try too hard. We all have to adapt to our own situation and, to a certain extent, become a bit 'selfish'. Most people don't understand Ataxia but that is their problem and not ours.

Sorry to run on but hope it helps. Try to relax and not stress (easier said than done, I know) and do what you can, when you can and eventually you will get yourself sorted.

GOOD LUCK

Steve

[Chunguz in reply to Capricorn9157]

Thanx alot

[benning]

Always look on the bright side of life,even if today you feel like s....,tomorrow is a new day!

[Chunguz in reply to benning]

Yeah

[february]

Dear Chunguz, I agee, ataxia is so frustrating, as I've had it over 20 years now and it's progressed and will continue to do so. I try to count my blessings (so many) and concentrate on what I can still do, not what I can't! I try to exercise for strength and balance (safely, of course) and eat as healthy as possible (lots of fresh fruit and veggies). Being on this site is a godsend, as there are wonderful people on here that really understand what it's like to deal with ataxia! My best to you..., ;o)

[Chunguz in reply to february]

Thanx

[123geoff]

Dear Chuguz It is so good to get it out of the system of feeling low, none of us would be normal with the condition and having good and low times it is all apart of set patterns of your well being. If it gets too much for you them Ataxia UK will point you in the right direction. They do have people who can help when you feel like you are. Keep safe take care.