We are looking for people with DRPLA in order to try and get an orphan drug trial started. Our son was diagnosed with it in January and as it is a very rare form of ataxia it is vital to get as many patients together as possible to make it a more viable option for the pharmaceutical companies.
DRPLA: We are looking for people with DRPLA in... - Ataxia UK
DRPLA
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majajefferies
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4 Replies
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Hi 🙂 I posted your enquiry on 2 Facebook Ataxia Support Groups, and searched archive discussions for DRPLA. If I see any replies I’ll post on here 🙂xB
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SueMillmanPartnerAtaxia UK
Hi, have you been in touch with Ataxia UK? We keep a registry of people who are interested in participating in research and we may have a few people recorded as being interested. Sue
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