Tiredness- Help needed.

[illerpath]

Ever since I turned 17 back in Feb. I have been feeling exhausted from doing nothing. I get out of breath when walking to the bathroom, in the morning I have to ask my mother to bring me a bucket of water becauase I have no energy in me to walk all the way to the bathroom. Can someone tell me how to stop feeling this way? Writing this my hands are feeling so wet. I need some advice if anyone has any for me? I need help...

[springlove]

Sounds like you need a word with your GP.

[illerpath in reply to springlove]

The only problem is that my GP went for a holiday,

[Litty]

HOPEFULLY your GP will find what is wrong, but it does not sound like your ataxia? Can you see someone else in the practise? x

[illerpath in reply to Litty]

Thanks for the response! I do think its not reality, I did tell the Gp about all my problems a year ago, but she didnt help me much otherwise I wouldn't be going through these problems now.

[Litty in reply to illerpath]

Probably silly and definitely stalky - sorry - but last post worries me. You do not really know what the horrid guy sprayed and so you may be reacting still to that?? Just a thought??

Just do your best - exercise when you can x

[illerpath in reply to Litty]

That was a few weeks ago... I dont think the affects should last that long but I will have a word with my docters.

[kathie29]

Ataxia does cause fatigue. Unfortunately there is currently no cure. But perhaps you can treat the fatigue. There are treatments for that.

[illerpath in reply to kathie29]

Thanks for the response! I will talk about this matter directly to my GP when she is back.

[EmWakie]

Maybe u need to have a blood test to make sure it is nothing else , you should see your GP x

[illerpath in reply to EmWakie]

Thanks for the response! I have had countless blood tests when the problem occured but nothing.

[FFNick]

Several things you can look at. Take control of your life. Take advice from others.

1 Look at your diet. Try eating energy boosting foods. Mum will help.

2 Medication might cause lethargy. Look at side affects.

3 Your body is working harder with ataxia, causing loss of stamina.

4 Assuming you are getting a good night's rest.

HTH

[illerpath in reply to FFNick]

Thanks for your advice! I will surely try this things out... I will message you on here to let you know if it is working out.

Thanks.

[benning]

I don'twant to sound patronising mate but I think you may need to improve your fitness.

[illerpath in reply to benning]

I don't want to be rude but do you know what I am going through. No... You don't know me... You're insulting my intelligence because nothing can be cured by a little more excersize and you have no idea what my routine is, my diet plan, how much I excersize. So I advise you before you go telling me what to do know the facts. I don't come here to argue but i'm gonna say what I think and whats real.

[CraigJB]

I have this problem also. At one point I was convinced I had ME/CFS. Firstly you need some blood tests to check for thyroid function, diabetes, vitamin levels etc. If all is okay (it can often be a simple Vitamin D deficiency) you could try some supplements that are more geared to ME/CFS/Fibro. ProHealth specialise in these supplements. I took a 4 month course of their Mitochondria IGNITE, with very good effects. Downside is it costs £50 for a 2 week supply but if they’re going to help you you’ll know in the first two weeks. From then on I took their ULTRA ATP+ which is much cheaper & is a chemical used by the mitochondria to produce energy. CoQ10 is also helpful & a regular multivitamin & mineral.

Good luck

[illerpath]

Thank you very much for ur response and advice!

[Chloe-louise in reply to illerpath]

Hi, I know this was posted a while back but I totally get what you're on about. I'm turning 21 this summer, but have next to no energy and no matter how much I sleep, it's never enough.

I also have a couple other conditions one of them being an under active thyroid, which is autoimmune and can lead to other immune disorders. The bright side with having a thyroid problem, is all your Meds become free on the NHS. I was also diagnosed with chronic fatigue syndrome, when I was 14, which I just believe is caused be everything else. As there is no treatment for cf, so I refuse to believe I have it 😂 I also went to the doctors recently and my wbc is low, meaning I probably have another autoimmune disease, which I would rather over cf, as long as it's curable 😂 if you haven't already asked the gp or preferably get a neurologist to do an autoimmune profile. What helps me the most is even though you really really need to, try not to sleep to much and try and pace yourself, as much as you can. But other than that let's be honest it pretty much sucks. Anyway way hope you start to get back to your old self ASAP! X

[illerpath in reply to Chloe-louise]

I totally understand having more than one illness. Thanks for Yr response and I love the journey you've had! The neurologists and GPS do help but only so much. I also have anxiety which makes it more difficult just to cope with sca. Sometimes I think how things would be much easier with only Sca although I feel foolish to say that because I know what they are going through.