Ataxia UK
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head shakes

Hi not been on for awhile but was wondering if anyone else has a really shaky head that gives a pain, not a headache but just a pain in the top of the head, my head seems to shake constantly except when i rest my head anywhere, but even then my eye still wobbles

7 Replies

Sorry no head shakes but if stressed whole body can shake x


Hello Xray25,

Yes, my head shakes, worse when I'm stressed, or frustrated or nervous. So much that sometimes I find it hard to focus if I'm trying to read anything. The doctor tried beta-blockers with me, they worked for a while but not so much any more.

If something is causing you worry, pain or difficulty I always think that It's best to seek proffessional advice, a trusted pharmasist who know's your circumstances is always a good start.

Mel x


thanks mel yes it is worse if i am ill or frustratedrives me mad


I'm sure we're not the only ones on here with that problem either?

Good luck, keep thinking happy thoughts!

Mel x


I'm on 80mg slow release propanol seems to help still have the odd one


Hi xray25, my body and head shake too, if I am stressed, tired or cold it is worse. It is very tiring shaking and twitching, it does drive you mad. I used to have Botox injections in my neck, but stopped it as it made me feel like I had flu. I find diazepam helps , but I can only have an odd one as it is addictive, so I sometimes take one if I am going out. My head feels funny too like brain fog, my brain has shrank a bit so there is extra fluid, does not make me feel fine. My eyes used to wobble, but now it is just now and then, which is weird I thought. Hope you can get something to help your shake

Best wishes Suzie


Hi to all,

I had terrible shakes and took meds and had physio and they went away and come back now and again.

I wanted to share this info with everyone on Ataxia website to try - its fry and it works.

For two weeks now I have been using pressure points to alleviate my pain.

If you look on web you can see all the pressure points to use for what pain.

For head shakes I press the point between my eyebrows - THIRD EYE POINT - for 2 minutes.

I press the point every morning and night for 2 minutes and when AND if I get the head shakes again, I press again.

I have also tried the pressure points for sleep and leg jerks they have worked a bit.

Good luck everyone - no harm in trying!


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