Update on head pain

[ww-wibblywobbly]

Hi, just to update everyone from my recent post about head pains I've been having recently.

Last week my GP was away on holiday so I couldn't see him. But meanwhile I discussed these pains with my physiotherapist and expressed how fed up I was with them. Luckily for me a patient didn't turn up for their appointment at the physio while I was there. So he had extra time to work on me :).

So the physio worked on my head and neck for about 45 minutes. The pains could either be a kind of migraine or caused by a nerve which runs near the base of the skull apparently. I think my problem was probably due to the nerve as I have lots of problems with my neck being contracted.

Anyway since the physio has worked on this I haven't had any pains . Hooray 👍😁.

So I'm not going to see my GP unless they come back.

Hope you are all well and soon you'll going to be in lockdown, as we already are here in France so good luck with that everyone.

Love Alison xx

[PatsyIpswich]

that's so good to hear Alison xx

[nigelrheath]

Allo , allo en la belle France

You make a good point for us all to keep in mind. Because of our changing posture, most of it unconscious, our muscles are very likely to pull us out of shape or go into some sort of spasm, trapping nerves. Finding someone with trained and knowing hands can help enormously. I used to be such a person and remember well the relief I could provide by finding the pinch points.

On Monday I had a massage from a sports physio and she released a stickiness in my right hip and lower back.

Further such attention is now on hold until December.

Incidentally I got an email from DrTom Clouse, selling his new book and videos, too pricey for me. But he made a comment about teaching those of us wobbly Ataxians how to reconnect with the soles of our feet. Before wobbliness set in and we considered ourselves normal, we would automatically adjust our gait, posture, stride and balance from feedback through our feet and the ground. Since then I have been thinking about my feet and their connection with the ground as I walk. I feel more stable!

Nigel xx

[ww-wibblywobbly in reply to nigelrheath]

Thanks for that info Nigel.

I do a balance machine at the physio, on which I stand on a special mat and have to control a video game by adjusting the pressure on my feet. You're absolutely right about adjusting our feet - this machine makes an enormous difference, and then the idea is that we adjust more naturally in every day situations. If anyone can get to use one of these machines regularly then I highly recommend it. Too expensive to have at home, but I don't know if the Wii has anything like it 🤷

Take care stay safe

Xx

[nigelrheath in reply to ww-wibblywobbly]

Good idea about the wii, I will have a play later. xx

[maber]

Hi , that is great to hear , really positive ! Its been a long time since i was on here but i saw your name and the good input you have on here so i just wanted to say thats good news x

[Farooqji]

Was this a kind of massage therapy? Was it manual or with machine?

[ww-wibblywobbly in reply to Farooqji]

Yes he massages and manipulates my neck and head manually. I was told by the neurologist when I was first diagnosed never to have the electrodes put on me.

Does this head pain sound familiar to you?

Xx