Tiddle thee not: I seem to have trouble fully... - Ataxia UK

Ataxia UK

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Tiddle thee not

VivienMeeson1 profile image
16 Replies

I seem to have trouble fully emptying my bladder. Sometimes it can take 10-15 times to feel comfortable. I have had tests and scans etc and they found nothing wrong. I am not overweight l wondered if it could be something to do with my pelvic floor muscles. Im 63

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VivienMeeson1 profile image
VivienMeeson1
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16 Replies
anihol profile image
anihol

You could have an overactive bladder which is telling you that you need to go when you really don't. Try to retrain it. When you go to the toilet an have a wee stand up jiggle a bit and sit down to see if there's any more to come. Then tell yourself I'm not going again for at least 1 hour. If you get the urge to go in the hour sit down and count slowly to ten. The urge should go away. Continue this and slowly increase the time inbetween. Good luck x

VivienMeeson1 profile image
VivienMeeson1 in reply toanihol

Thanks l will try that

VivienMeeson1 profile image
VivienMeeson1 in reply toanihol

But it feels so uncomfortable like l am allergic to having it in my body.l can use half a look roll a time and have to get up 15 or 20 times yet there nothing wrong inside the only cure is sleeping pills

anihol profile image
anihol in reply toVivienMeeson1

It could be an irritant. Do you drink wine, coffee, anything strong? Try a day with just mainly water and see if that makes a difference. Bladder spasms can be caused by things such as alcohol and caffeine or too much sugar or fizzy drinks.

VivienMeeson1 profile image
VivienMeeson1 in reply toanihol

No l only drink orange squash

VivienMeeson1 profile image
VivienMeeson1 in reply toVivienMeeson1

But thanks anywa8

anihol profile image
anihol in reply toVivienMeeson1

Could be the citric acid or saccharin or false sugars

VivienMeeson1 profile image
VivienMeeson1 in reply toanihol

I only drink unsweetened orange squash thanks anyway

anihol profile image
anihol in reply toVivienMeeson1

You might need an antispasmodic to help go back to your go and ask for further help you shouldn't be being left when it's like that. X

wobblybee profile image
wobblybee

Hi😊 You might be surprised at how many Ataxians have bladder problems. After having so many tests it must give you some reassurance that nothing drastic is in the offing🤔

Google 'neurogenic bladder'. There are several links which help in understanding the condition😊xB

VivienMeeson1 profile image
VivienMeeson1 in reply towobblybee

Thanks so much for your advice I've read the article but sadly it's not getting me any closer

stjamesangel profile image
stjamesangel

Hi Viv I was the same and getting up 3-4 times during the night. Feeling as though I really needed to go or I'd wet myself! only for it to be a thimble full and just as I move I'd want to pass more water. Thankfully it's gone normal now. Hope everything goes well for you x

SueMillman profile image
SueMillmanPartnerAtaxia UK

Hi Viv, although bladder difficulties are known to be an issue that goes along with ataxia, at Ataxia UK we were surprise by the response to our survey last summer in which 63% of our 366 respondents reported these problems. There were several other issues like this, and we are going to be looking to form research partnership with other charities who work in these areas. e.g. in this instance Bladder Health UK. You may manage to get some specialist advice from one of these, bladderhealthuk.org or bladderandboweluk.co.uk/. Best wishes Sue

neta profile image
neta

I had a similar issue. A urologist who specializes in brain issues gave me a med called Spasmex, made in Germany. It helps but also gives me a very loose stool and gas. Apparently many folks w brain issues also have bladder trouble. N

Driven1 profile image
Driven1

Check out Bladder training on the net, worked for me.

Wyndham profile image
Wyndham

Don't assume orange juice is good for you. Firstly, any undiluted juice is usually too much for the stomach. Secondly your body may simply not tolerate orange juice. This happens to more people than you might think.

Your GP can advise.

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