Lying down and sitting..

[neta]

Why am I so much better (even perfect) when I lay down (in silence) or sit down? When I am engaged in either, I feel normal... If the issue is that our heads are still in these poses, can't this be replicated by a device or heavy piece of metal worn on the head?

[xray25]

i also feel norml laying down and sitting once my head stops shaking its only when i stand

[neta in reply to xray25]

yes Its such a tease! My head doesnt shake outwardly but inwardly, it must.

[xray25 in reply to neta]

my head shakes outwardly as does my arm but sitting or lying down puts me in a false sence of security, i even booked a holiday abroad got up remembered i cannot walk and thought how am i going to do this, but i did it was a bit hair raising occasionally but did it

[neta in reply to xray25]

Yeah..sometimes I forget too. But at least you did it. Brava! In my case, nothing moves outwardly and no one can tell tiil they see me move and then I seem strange. I have been asked "do you have MS?" " I usually say that I broke my leg. Explain CA is too complex. How long I will get away with this white lie is anyone's guess.

[xray25 in reply to neta]

my ataxia was bought on by a massive stroke, my face is out of shape so people think it was that so do not have to explain why i walk as though been drinking all night, although usually in wheelchair

[neta in reply to xray25]

Really? You look so young to have had a stroke. Was it brought on by something? A youngish gal whom I know had a massive stroke too. This, just a short time after she re-married. But her husband stood by her which is nice especially since she stood by husband#1 who was stricken with a lethal form of cancer though her parents were against them marrying. -- though they did. The world aint a simple place for some, that's for sure.

[xray25]

No came out the blue I was 48and I am 52now, my husband is my rock unsung hero would not no what to do without him as I hot breast cancer 8months later. It sure is a funny old world that's for sure

[neta]

When it rains, it pours. At least, your husband is on board! Mine is not.

[goodenough]

I'm exactly the same. Can do anything sitting or lying but can hardly walk I am so dizzy. However, eyes are jumpy (nystagmus) whether sitting or lying.

[neta]

Its unreal, In fact, I often forget what is going on with me (sorry 4 the italics). N