I have now received both an appointment for next year - very efficient, but now need to make sure that I remember it for next November!! - and a copy of the letter sent to my GP.
The letter is very detailed and includes a couple of bits that I am unsure what they mean so will make an appointment with my GP to go through it so I understand it all.
Also since my post about going to Oxford and mentioning I lived in North Devon I have met up with a lovely lady (Marygate) who lives about 30 miles away. We spent an afternoon chatting about things both to do with Ataxia and also more general stuff. Hope this will become something we can do again. She has also told me about someone else she knows locally who has FA and is in their 50's and hoping to meet up with them too.