Hi, hope you’re all ok.
I just thought I’d share my experience and ask for your opinions and advice 🤗
So, I thought the consultation was a bit one sided and it felt a bit rushed 🤔, but maybe that’s me expecting more of a chat.😆
He didn’t cover much about my asthma history just saying ‘has it just got gradually got worse?’ He didn’t ask about my triggers either, although he did ask if I have hay fever (no) , I forgot to tell him about rhinitis (damn!)🙄.
He didn’t know about the blood tests I’d already had done, so I told him my asthma nurse had said i had non allergic and non eosinophilic asthma. He explained that he was involved in research about this and that not much was known yet, still finding out etc. He thought my asthma was to do with something in my throat (microbe?) that shows up like COPD symptoms (wish I’d been able to record and play back the conversation. I always forget what’s been said!) 🤦🏻♀️🤷🏻♀️. As for medication, I’m on everything I can take, but fingers crossed my breathing is much better at the moment 🤞
He also went through a series of computer based questions (I think designed to give a rating on how severe your asthma is) but I found it really difficult to answer the questions as they were based on the last 3 months. If he’d asked me a month ago when I couldn’t breathe very well, then the answers would have been easy! 🤷🏻♀️ I found myself guessing, because I just couldn’t work out ‘how many times in the last 3 months my asthma had affected my blah blah blah! No idea! Without taking ages to go through my notes to count how many times I’d had to take ventolin. So Im not sure how accurate or useful the result of that was!
Anyway he’s referring me to ENT, I’m not sure what will happen there so any ideas welcome.
Also reverse spirometry and had a FeNO test while I was there. I failed it! 😩. I couldn’t breathe out either slowly enough or in the correct way. The nurse had to repeat the test so many times it became farcical 😂. She kept explaining to me again and again what to do and I was saying ‘but I think I’m doing what you’re telling me to do ie blow like you’re blowing up a balloon’. It was so frustrating because I wanted to do it properly. We got a reading at the last couple of seconds on one of the tests, but that was it , I couldn’t replicate what I’d done so we had to give up in the end. I was getting chest pain and had to take my inhaler! Has this happened to anyone else or is it just me?
Sorry if this was a bit rambling and lengthy! Thanks for reading 🤗