I had a frustrating experience at the hospital yesterday. I've been in a bad flare that's gotten progressively worse so last week I started my at-home protocol of 50 mg of pred a day and Ventolin 3x a day. Yesterday, on day 6, I was even worse so I went to the hospital. Because I wasn't wheezing and my peak flow was ok, the doctor insisted it's a chest infection not asthma even though I have no other symptoms of infection (a bit of mucus but that always happens when I have a bad flare).
Does anyone have any tips for explaining to emergency personnel that you can be in the middle of a very severe flare and have a normal-ish peak flow and not be wheezing because it's your small airways that are completely blocked? I tried explaining this and he said, Yes yes I know asthma is a disease of the small airways.
It was very frustrating and I felt like once he decided it was a chest infection he got tunnel vision.
Any insight or advice welcome! Thanks so much.
this seems a perpetual problem. You would hope that younger doctors were better trained
I never wheeze and my PEAK flow will only dip slightly. So usually get “ are you sure you have asthma”.
I feel like I see people talking about this almost constantly here and in my other asthma online support group. How do more doctors not know wheezing is not the norm for a ton of us? How do we spread that message?
I had almost the opposite problem. Looking back, I realise that I ended up in A&E a couple of times with asthma attacks before I was diagnosed. I was asked more than once 'have you been diagnosed with asthma?' and when I said no, the response was 'well it really looks like asthma, but since you don't have it, it must be stress or a virus.' It never seemed to occur to them that I might have UNdiagnosed asthma!