So apparently, I now have brittle asthma (was adult onset asthma about 2 years ago) and it is getting worse. Since I had a bout of a+e visits about 3 months ago, I find it is not getting under control. My consultant has added spiriva respimat in with my fostair (I am also on fexo and montelukast) and I now have a nebuliser for salbutamol.
I'm finding it really difficult to know how to handle it. I'm struggling at work (currently on a phased return) and only managed an hour yesterday before I had to admit defeat and go home. I saw the ANP at my surgery and she has given me yet another course of amoxicillin as there is a bit of noise on my chest (I had already started on 40mg pred last week after seeing her).
Thankfully i haven't had to go to a+e again (I think because I have access to my nebuliser) but I'm just so bloody frustrated with myself. It's like I go from 0-flare up/asthma attack in about a minute. The ventolin inhaler doesn't work so out the neb.
At my last appt, my consultant said he would look at introducing theophyllin/aminophyllin but wanted to start with the spiriva first. As i understand it, there are a lot of side effects with theophyllin? But does it help? I'd take the side effects if it meant I could have a chance at being normal and working without having to have the back door open (which is now becoming an issue because it's so bloody cold, but I can't breathe with it shut most of the time). Even just walking from the car to the hairdressers the other day killed me. I had to have lots of puffs of ventolin and then 2 nebs when I got home.
I'm sorry for the essay, I'm just feeling pretty fed up with it all at the minute and I hate pity parties, but I just want to feel better.
What other things can you guys suggest to try and help please?
Thank you x