Hiya, hope everyone is well.
This is a bit of and ""argh ..."" post! So sorry if anyone is frustrated by it!
I am currently going through a really rough patch asthma wise, I have a brittle diagnosis, but it recently seems to have taken brittleness to a whole new level. Since June I have had at least 12 serious hospital admissions ... at least 8 of them have resulted in admission to A&E and straight into resus and most admissions have resulted in some sort of stay on HDU ... If I am lucky I might get to go to Critical Care if I don't need constant monitoring.
Mostly my local hospital has been great, they know me well now and though in the beginning I felt dismissed at times, they now know that I always require treatment with at least hydro and mag, and sometimes during a bad attack, adrenaline etc plus extra mag (the most ever has been 3 doses over a period of a couple of days when an attack has proved difficult to resolve). OR this was until the last 2 ""admissions"".
During the last 2 (8 days apart and really pushing it in between ... one of the GPs at my surgery wanted to admit me during one visit) I have encountered the same dr in A&E, for some reason (despite my cons having something in A&E about me for when I turn up) has decided that I don't have asthma. I rolled up on Tuesday evening critically ill and struggling to talk in full sentences (I now don't leave going to A&E until I cant talk properly as I did for a while after coming scarily close to needing to be ventilated) to encounter this same Dr, who was unfortunately in charge of A&E, she decided I was having an anxiety attack, despite blood gasses not being good as my sats were fine ... 96% SpO2 on room air, very tachy and very high resp rate ... normal for me during a ""severe acute"". I asked for her not to treat, but got the same response from a dr who has given mag when I've been better than I was on entering A&E. Anyways, I was left for a while (after being given nebs!) and ignored and deteriorating very quickly, so discharged myself while I still could.
I then went to another hospital totally unable to talk, was treated with mag, hydro, adrenaline, b2b nebs and oxygen ... amino also ready, but fortunately wasn't necessary. I entered not able to talk at all (an AUK friend helping me to make sensible decisions, which wasn't going to end horribly!), was taken straight to resus where they treated very quickly. I then went on to spend about 12 on HDU. I then went to a normal resp ward and then was allowed out at an earlier point than I usually am on the condition that I use QDS+PRN nebs for at least 3-4 days, up the pred and start a trial of azithromycin when I get to 20mg of steroids.
SO ... I booked a GP appointment today, as needed to sort out meds and a script for the antibiotic etc. I couldn't see any of the people I like to see (because they GET me!) so had to see one I haven't seen eye to eye with in the past. She said in the appointment that my sats are always fine and don't look like life threatening attacks despite a resp cons saying ""life threatening attack"" ... surely a resp cons wouldn't confuse anxiety and a life threatening attack? I know that anxiety attacks change your ABG numbers (I thought this was the opposite during an asthma attack, and that pO2 wouldn't drop to 6 anyway!!) and that she thinks that I am basically well controlled and am hospital hopping?! I only went to a different hospital to where my cons is as I wasn't being treated and was having a life threatening attack!!! She also isn't willing to prescribe the antibiotic, as its not a treatment that has been started by my normal consultant!!
Sorry for ranting, but its just really upset me. Really struggling with how uncontrolled my asthma is at the moment. I don't have anxiety issues (thank goodness) ... but won't deny that not being able to breathe is flippin' scary!!!I don't know what to do now. I was hoping that I might get some degree of control with the antibiotic, but how can I if the GP wont prescribe. Is this even allowed/justified??
Argh ... sorry for the rant/ cross post .... really feeling overwhelmed and want my life back and not have asthma screwing everything up!!! :'-(