breathlessness

[Jk1957]

how do people cope with breathlessness

I have bronchiectasis .I use Sympocrit twice daily but still get so breathless

Any tips please

[knitter]

check out the Asthma and Lung Conditions website .

In search box I typed How can I manage my breathlessness ….some ideas there .

Google the Asthma and Lung Conditions , not the one at the top which is sponsored ….that one wants you to sign up …..but the one below with the pink cross logo on …easier to access , nothing to sign

Quite a lot of other information too.

If you are a UK resident you can contact the ALUK helpline .open tomorrow.

Pursed lip breathing helps me ….videos on you tube .

best wishes .

[Jk1957 in reply to knitter]

Thank you so much Knitter . Can I ask you have you bronchiectasis ?

My lungs bleed so easily I have to watch myself with the huffing breathing techniques . The support on this website is amazing . I live in Ireland

[Ern007]

To be honest how I cope with breathlessnes -Well I just do, I have COPD/Asthma controlled and Dyspnea - I have Fostair/Atrovent and Salmanol to help with breathing from COPD and Asthma, I also have a resue pack Doxy and Pred ,

Dyspnea is another matter, comes from heart problems as well as lung, so difficult.When I get out of breath with (Dyspnea) I ust sit and take it easy until it passes,

I think Knitter is right, if a UK resient phone ALUK helpline - 0300 222 5800.

[Jk1957 in reply to Ern007]

Thank you Ern007

[Biker88]

I have been prescribed a low dose of Oramorph which is a standard treatment for breathlessness and find it dose help ease it off

[Ern007 in reply to Biker88]

Hi Biker88.

I take Oramorph for pain - 2.5ml to 5ml every 4 hours if needed. I find Oramorph helps my breathing also. It kinda relaxes it. You say low dose, are you on 2.5ml?

[Biker88 in reply to Ern007]

Hi Ern, I’m on 1.25 ml every 4 hours as required, at such a low dose it doesn’t become addictive are stop me driving

[Ern007 in reply to Biker88]

Thank's for replay. I started with 2.5, but condition got worse, so now I take as needed but I keep it as low as possible, the effect on breathing is a welcome side effect, I am able to drive as I am used to it, but if even slighly tired, I don't.

[Emily-G]

Hi, pursed lip breathing helps me too and leaning slightly forward as I breathe helps me also. Have you seen a physio? Mine has been really really helpful. My gp referred me

Hope you feel better soon xxx

[LissacFrance]

Hi, what other meds do you take for the Bronch? My wife has Azitro 3x per week and does a lot of walking, 3 km per day. We also play table tennis as the arm movement helps to clear the mucus. No other ideas at the moment, so wish you well and I`ll get back to work, Chris.

[Jk1957 in reply to LissacFrance]

Thank you LissacFrance

I take Azithromycin 3 days a week also & I walk 3or 4 km a day .

My lungs bleed easily which is also very scary & getting very breathless often leads to a bleed .

I don’t get a run of good health very often

[LissacFrance in reply to Jk1957]

Oooh, the bleed on the lungs does not sound too good. What does your consultant have to say about that? Must get back to work, take care, and don`t be afraid to call your consultant`s secretary if you can`t speak directly, Chris.

[Jk1957 in reply to LissacFrance]

All under control thanks Lissac . I’m

Used to them now but doesn’t make it easier . Anyway we will keep going & Im under a very good Respiratory Dr

[LissacFrance in reply to Jk1957]

Pleased to hear that. My wife has visit to see pneumo consultant early November, let`s see what she has to say. I expect oxygen levels will be down this time. She has still not fully recovered from Covid we picked up when on holiday last June. Not the best holiday we`ve had. Have a good evening, Chris.

[Karenanne61]

I am prescribed oxycodone (allergic to morphine) and find it helps. I have inhalers too. I think keeping as active as possible helps, e.g. yoga, pilates, walking. Some members here are members of singing groups and I think playing the harmonica was mentioned! It's a blessed nuisance! 🤣

[Jk1957 in reply to Karenanne61]

Thank you Karenanne61