Not GCA

[Izb1]

I had a call from the rheumatology doctor I saw in ACU to say the results of the biopsy have shown that it is negative for Giant Cell Arteritis, he said I would need to go back to my gp and be referred back to neurology. I told him I was surprised as I had felt alot better on the steroids and had hardly any ear/eye pain since starting them, he said the antivirals he put me on was the reason for this and thinks I could have had a reaction from the shingles vaccine hence the stippling in my ear, again I will need to speak with my gp re this. I really don't think my problems are Trigeminal Neuralgia and not sure what path I need to follow now. I don't have any faith in the neurologist I saw and the biggest problem is everything takes so long to get sorted . My gp is very good but only works 2 days a week and getting an appointment usually takes around 3 weeks, I would like to say a big thank you to all who have replied and been so supportive, you are a great bunch of people x

[sassy59]

Onwards and upwards Irene. So pleased you are doing better and don’t have GCA. Bit of a pain about having to go back to the neurologist especially as you’re feeling a bit better. See how things go and sending positivity and hugs xxx🤗❤️🤗❤️

[Izb1 in reply to sassy59]

Thank you so much Carole . Hope with you and Pete are doing well x

[sassy59 in reply to Izb1]

We’re not too bad thank you Irene. Take care xxxx❤️

[Dottie11]

Great news. GCA is a horrible condition . Steroids and antivirals work very well for the symptoms you have suffered. Fingers crossed you continue to improve. I know the Shingles vaccine is a tough one. Take care. xx

[Izb1 in reply to Dottie11]

Thank you Dottie, yes am glad it's not GCA x

[Patk1]

I hope u continue to improve and that neuro can help xxx

[Izb1 in reply to Patk1]

Thanks Pat, at least it's one thing ruled out now x

[Alberta56]

I'm glad you're feeling better and that one nasty condition is ruled out. I think I'd rather talk to your nice GP rather than an unsympathetic neurologist. Hope the good progress continues and makes that unnecessary. xxx

[Izb1 in reply to Alberta56]

Thank you Alberta, yes will see if I can get to see my normal gp x

[Dottie11 in reply to Izb1]

Good idea speak to your normal GP. My Rheumy said vaccines can sometimes trigger our AI conditions and flare virus issues. I was misdiagnosed with TMJ which lead to wrong access of meds. Not helpful at the time. Good luck. xx

[Izb1 in reply to Dottie11]

I think taking the wrong meds causes all sorts of problems, its so important to get the correct diagnosis, hope you are OK now x

[Dottie11 in reply to Izb1]

Yes I am much better thank you. I has been a very long journey. It is not just the physical symptoms but the "not knowing" what is wrong that also takes its toll. Steroids are great for getting inflammation down and used in so many circumstances but nothing beats knowing what you are treating. xx

[HungryHufflepuff]

I’m glad you’re doing better now 🤗

[Izb1 in reply to HungryHufflepuff]

Thank you HH x

[Mooka]

so pleased for you that you don’t have GCA. I hope you get some explanations soon.

[Izb1 in reply to Mooka]

Thank you Mooka, am pleased too that I don't have GCA and think it may take quite some time to find out what is really wrong x

[Otto11]

So pleased to hear it’s not GCA but then you are left wondering what it actually is. I hope your GP can help in getting a proper diagnosis. So frustrating.

[Izb1 in reply to Otto11]

Thank you Otto, yes if is a nightmare finding what is wrong but this is getting worse so I really need to have a correct diagnosis x

[watergazer]

Good to know you are feeling better.xx

[Izb1 in reply to watergazer]

Thank you Warergazer I think the steroids helped along with the antivirals x

[Ern007]

So glad for you don't have GCA - You can now look forward. x

[Izb1 in reply to Ern007]

Thank you Ern. I will look forward to getting this sorted out and hope it won't be a long road x