Here I am again

[adenough]

Hello to all lovelies

Been up & down of late.. that I think was due to stopping one of my pills abruptly.. did more research which told me to not do that so went back on it for a couple of weeks, then weaned off very slowly, finishing this week.. so thats now three I’ve stopped, phew 😮‍💨 just getting back to walking up & down the hall. Anyone else out there with long covid on top of copd serious stage? ?? It’s all a nightmare, but I keep going Make the best of everyday now is the only time we have xx

[djbctla]

Hi adenough

Make sure u are weaning of your medication with your doctors knowledge and information as to how to do in correctly.

Well done for making the most of every day.

🌹🌹

Best wishes BERNARDINE

[adenough in reply to djbctla]

Doctor WHO! Lols 😝

[adenough in reply to djbctla]

Dr WHO I wonder.. haven’t seen a gp for more than three years, so no.. but boy have I done my research..inside out & back to front.. so glad I never had the jab.. would probably have finished me off! I’m a tough old bird!

[sassy59]

Take care adenough, it’s good to make the most of everyday so well done. Xxx

[Mellywelly]

Hi chook, I really feel for you with long covid to cope with aswell. Haven't been the same since the dog attack, only trouble is trying something new all the time which doesn't work, having to wait longer than a month to try something else new. Like a vicious circle where your life is dwindling away just waiting. So I do feel for you and really hope you find something that works for you whatever it is. 🤞🤞🤞😉

[Alberta56]

I hope things are gradually getting better.🤞🤞🤞

[Nula2]

Hi adenough 🙋‍♀️, well done for making the most of every day👍❤️. I try to count my blessings, not always easy but when I crawl into my bed at 8 o'clock in the evening I am reminded that I have my own bed to sleep in. Some people don't 🙁. Count myself very lucky for that. Also try to focus on things I've achieved (like walking to end of road and back) and not what I can't do anymore. Talking to you lovely people on this site has helped me to do that 😊xxxx

[warwickstag in reply to Nula2]

I'm happy to walk the 5 yards to the loo, and relieved to get there, but still pleased like you to have a bed to crash into, albeit usually at 3 in the morning as I'm an insomniac !

[Nula2 in reply to warwickstag]

Oh is there something that stops you sleeping? I wake about every 2 hours in the night but that's due to a really dry mouth & throat that wakes me up - I then have to rush to the loo 🙄 and back my bed again but it must be worse if, like you, you just can't sleep 🙁xxx

[warwickstag in reply to Nula2]

I've had bouts of insomnia on and off for most of my adult life, nothing specific, just an overactive mind I guess. When I was physically more active I could go to bed and fall asleep in minutes, but now I spend nearly all day in my riser/recliner and can't seem to switch off. Regularly drop off for a few winks in the day, but wide awake at bedtime.

[Nula2 in reply to warwickstag]

Oh that's miserable for you 🙁. I am tempted to go to bed for a nap in the day but try to just go to bed early. I sit up intending to do crosswords for a bit but fall asleep after about 10 - 15 minutes😆 (I'm awake every couple of hours due to very dry mouth and a need to rush to the loo as I said but am lucky in that I sleep in between. Have a wedge pillow and 2 pillows on top cos can't breathe laying down, like most of us dodgy lung people. Wish there was a cure for your insomnia as it must be hard to deal with xxx

[warwickstag in reply to Nula2]

It's not great, but there are people who are far worse off. Like you, I sleep in a semi-upright position, can't lye flat. I also have to use a nasal vent (CPAP I believe) as I am a CO2 retainer, but once asleep I can get a full uninterrupted 5 hours, so It's not all bad.

[Nula2 in reply to warwickstag]

Oh that's good 😊👍. Take care xxx

[adenough in reply to warwickstag]

Unable to sort my body clock, awake till at least 5am tried everything but no meaning I sleep in the morning, not waking up before midday, so annoying but on the bright side I do wake up😂😂😂

[djbctla in reply to adenough]

😂🤣😂BERNARDINE

[Musicalways]

Hi AdenoughI too am grateful for every new day. I too have cold and long covid. In fact they came together for me. Last four years been serverly difficult. Everything I chose to day involves pacing choices research and timing. Wish you all the best 👌🏻

[Patk1]

Hiya.be wary of stopping medications without drs advice x

[adenough in reply to Patk1]

No, end of.. glad I woke up to everything that’s really going on, phew 😮‍💨 Best wishes to you xx