update MDT

[Numptybrain]

we’ll I got the telephone call and no I can’t have biopsy’s done so it’s just watch and wait, left breathless and in pain with bilateral plural effusion, not enough evidence for cancer so no biopsy small effusions for can’t drain and only a needle can remove a small amount occasionally at plural clinic which I do have access to, they have doubled my water tablets hoping it may draw it out but that was tried before via vein and oral without success so it’s attempt 2 and if I get extremely breathless, back to hospital just incase it’s became infectious . My moral is at its lowest point so GP has put me on antidepressants mainly for anxiety, but I am low too, I really don’t know how much more I can take even though I’ve always been a good believer in there’s always someone worse off than yourself. My hips and other joints are hurting and can hardly move due to my immobility so arthritis is rife. Sorry for rant but it’s how I’m feeling.

wendy x

[helenlw7]

So sorry to hear how bad you’re feeling. My view has also always been there’s always someone worse off, but it doesn’t really help the pain does it? Sending you gentle hugs.

[sassy59]

Sending you lots of hugs and good wishes. Pain is a terrible thing. Xxx

[leo60]

Sorry you’re feeling so bad Wendy, life can be very unkind. Thinking of you xx

[peege]

You rant away Numptybrain, I think you're well and truly entitled to after this disappointment and what you're putting up with ××

[Numptybrain in reply to peege]

Thanks, my GP rang me today and I broke down on the phone so my husband took over. He was lovely and told hubby he’s there for us both and will ring in 2 weeks but to ring if we need him.

Wendy xx

[peege in reply to Numptybrain]

I'm so pleased to hear that. Someone on your side & a good husband! Thinking of you xx

[Numptybrain in reply to peege]

My doctor is good thank goodness and my husband is great but it’s taken years of training him haha

Wendy x

[Patk1]

Ru taking painkillers for joints x

[Numptybrain in reply to Patk1]

Numerous for years but with me being practically immobile it’s getting hard for me I also have osteoporosis so keeping my weight at bay, although I really don’t feel like eating it’s the immobility that’s causing weight issues. One problem sparks more. I’m just walking to wet room and I am struggling to breathe even sitting down it suddenly comes on, I get hot and struggle to breathe. All they recommend is oramorph as it helps with breathing and pain so I’m trying to limit it otherwise I’m constantly sleepy. I know the issue also of the fact this fluid can get infected and I’m prone to sepsis also and f I still have this in a few months time I’m hitting the year anniversary to when it all started and that ca mean more chance of malignancy. Sometimes I wish I was ignorant to the knowledge. I’m just praying for a miracle that miraculously the water tablets will suddenly work but after trying them on IV I’m not optimistic but saying that this is high dose 80mg so who knows maybe it’s me just being negative because I’m so low. Please cross your fingers and toes for me I’m 61 with two beautiful daughters who need their Mam still and a gorgeous special needs grandson who I don’t know how I could explain I’m leaving him.

Wendy xx

[Patk1 in reply to Numptybrain]

Xxx

[Mellywelly]

I am so sorry you are in pain and feel so down. As for there's always someone worse off than yourself doesn't really help when you are in pain and feel low. I wish you well chook 🤗

[Zand60]

Dear Wendy, how horrible for you 😔 you rant away, it's allowed after everything you're coping with, you are stronger than you think. It takes enormous patience to train a hubby sending you best wishes hugs 🤗Love Lesley xx

[Alberta56]

That is so sad to read. They really should be looking at ways to control the pain. I presume there isn't a pain clinic or a hospice they could refer you to.

[Numptybrain in reply to Alberta56]

They haven’t mentioned anything to me just oramorph.

Wendy x

[Alberta56 in reply to Numptybrain]

Grrr! They should be able to do more.

[watergazer]

Bless you Wendy. I am feeling pain more as I get older and I can’t deal with it as well as I used. Sending you hugs 🤗🤗🤗

[Nula2]

Ah Wendy, it's not a rant - it's sharing with friends - hope it helps just a little bit. We all know there are "people worse off" but it's your situation you're having to deal with and to my mind I don't find that helps. I feel it makes me think we should cope better than we do. Not the case. We all cope really well considering ❤️xxxx

[Souielouie]

Sending you a Big Warm Hug 🤗 bless you 🥰

[Germantara]

Sorry to hear you're feeling so low in you're self with you're health issues I sincerely hope things will settle down and hopefully you feel better in yourself take care