liquid oxygen

[Rich1957]

Looking for some advice , 4 weeks ago I had my oxygen changed to liquid oxygen ( still the same rate 8L upon movement) . The reason being it was hoped I could be more active as the liquid oxygen was about half the weight of a normal oxygen cylinder .

Do other people find liquid oxygen better / easier to use ?

Do people ever run out , before your weekly delivery ?

Has anyone had it completely empty while trying to fill the container ?

Also I’ve been put on morphine tablets 10 mg twice daily , has anyone found these have helped ?

Many thanks

Rich

[Sundance115]

My oxygen nurse recommended I try slow release morphine but was relectant and chose to stay on the occasional dose of oramorph.

There's a small study here and would be interested to know how you get on

ncbi.nlm.nih.gov/pmc/articl...

[Rich1957 in reply to Sundance115]

I tried Oramorph 2.5ml when needed but I was reluctant to take it knowing what it was . I think I then struggled with it even after reading what a low dose it actually was I had it in my head that I didn’t want it and when I did take it , it didn’t seem to do anything.

I’ve took a diffent view to Morphine after reading what it hopefully will do for me and it’s not taken as a pain killer 🤦‍♂️😂as I initially thought . I started on 5mg twice a day and then they upped it to 2x10 mg per day and it seems to be relaxing me in the evening especially 🙏

[CDPO16]

HI, I can't help with the oxygen query but I have been taking slow release morphine tablets twice a day for over a year. I can't honestly say whether they have helped much but they haven't had any adverse effect.

[Rich1957 in reply to CDPO16]

What dose of morphine have you been on and have you took a laxative as well ? Not sure if I’m on a slow release but mine is morphine sulphate oral 10 mg tablets

I’ve been taking sodium docusate 100mg which have also been brilliant

[CDPO16]

My morphine tablets are MST Continus 10mg, prolonged release tablets, Morphine Sulphate.I had constipation long before taking them as a side effect of other meds. I currently take Laxido each night.

[Rich1957 in reply to CDPO16]

Is that 1 or 2 tablets a day ? Also do they make you dream more ?

[CDPO16 in reply to Rich1957]

One tablet twice a day. I do dream quite a lot but haven't associated that with the mst.

[PaulineHM]

Hi Rich,

Sorry you are disappointed with the LOX.

I use 5LPM when on my feet. I find the LOX flasks definitely easier than bottles, but to be honest do a lot more. I found the bottles really held me back. At exercise class the LOX Flask sits on a chair next to me.

The BIG LOX Dewar ( huge tank ) I have become quite good at planning how to calculate how much I will need before I reorder. It has a series of lights on it which show me how much there is left. I always reorder when there is a little left in the Dewar.

There was one time when it had been over pressurised and I couldn’t fill the flasks. It has never emptied itself and should never do that.

Who is the supplier ? They should fix it the same day . I don’t hesitate to call my supplier if there is an issue. You can’t be left without oxygen. You have a large bottle for emergencies?

Do you have a concentrator as well ?

I find regular exercises really help.

I can’t help you with the Morphine I’m afraid - not having to use it yet.

Let us know how you get on.

Go well,

Pauline

[Rich1957 in reply to PaulineHM]

Hi Pauline thanks for your informative comments , I agree that it’s a much better system and so much lighter to carry . I’ve had 4 tanks so far the first one was like yours and fantastic with the lights and getting 4 fills per light so could get 32 fills which equates to 64 hours of oxygen for me . But the last 3 containers have like the one in the photo and I haven’t got on with them at all 🤦‍♂️. One ran out , one was ok and the last one emptied itself when I tried filling my container, so hence my post .

I don’t have any back up or a concentrator as I send them back which I think was a big mistake as I found the concentrator to noisy and the tubing became a hazard going up and down the stairs . Now it doesn’t seem to be on my prescription with BOC . So because of this they won’t come out the same day as I’m considered to be on only ambulatory oxygen

What kind of carry bag do you use as I seem to get a lot moisture on my back pack I’ve used ?

[PaulineHM in reply to Rich1957]

Hi Rich,

Sending you a couple of photos of the set up here. It seems it will only send one photo at a time so will the other shortly. Above is the flask which I fill from the Dewar. I have two of these flasks and one back pack ( as in the photo ) These flasks hold 4 hours of 02 each when I use them. If I fill them and then don’t use them then one will last almost 24 hours before it exhausts itself.

The Dewar usually lasts me about a month but of course I use the concentrator in the house. Am on ambulatory use, ie when I am on my feet. I haven’t actually counted up how many fills into the flask from it, probably about 3-4 a week.

I wait until I have two/three lights left and then reorder for delivery the next day or day after that. Am with Air Liquide who are brilliant.

Can I suggest you speak to your Home Oxygen about your prescription ? Appreciate a concentrator is a bit of a hassle but not sure I could cope with just using LOX flasks at home all day

If I can help you further please do ask and let us know how you get on.

Pauline

LOX Flask and bag

[Rich1957 in reply to PaulineHM]

My one looks nowhere near as good as yours and my main tank . I’m going to try to get the same as yours as I spoke to the BOC delivery guy today and he said they have had loads of problems with the one I’ve got . But they don’t have enough of the one you have , so wish me luck 🍀

My liquid oxygen container , possibly the same chair as yours 😂

[PaulineHM]

LOX dewar

LOX dewar

[PaulineHM]

You will have to click the photos to see them fully I think ?

Yes do get a lot of moisture on the sides of the backpack due to the LOX exhausting, as I use, into the air, which is how it works I think ?

Pauline

[Petrina_gmfc]

Hi Rich1957 I was put on morphine tablets for my stomach as I have cirrhosis of the liver I was taking 1 tablet twice a day I was at the doctors last week she told me to take 2 tablets twice a day and take some morphine liquid at night when I need it .

[Rich1957 in reply to Petrina_gmfc]

Hi Petrina what strength are the tablets ? I’ve been finding they help but probably for only 3/4 hours

[Petrina_gmfc in reply to Rich1957]

I am on 5gm