My rescue pack

[Morrison10]

I’ve been on 1 daily Azithromycin since 1 December last, worked well, so I’m disappointed to have to start yesterday my rescue pack 750mg Ciprofloxacin, 2 daily for 14 days. Have to recognise though when they’re needed, and keep good supply, fingers crossed work well. I’ll update on progress. May not have helped that my private physio is ill with flu, hasn’t treated me since 5 May, usually comes twice weekly, makes big difference. Though I can thump my lungs etc, it’s not as effected as her. Jean x

[Minehead123]

Hi Jean cipro is the only one that works for me so know how you feel. If you don't feel it works as well as it should you can have iv at home but that means being fitted with a special cannula (I think). Me being only 7 stone I wouldn't like to take the 750mg so have 500mg. Good luck and hope you feel much better soon x

[Morrison10 in reply to Minehead123]

HI, thanks. Over the years I’ve had six iv courses that I did myself into cannula usually on back of hand, with help from late husband. Had course late last summer from nurses who came 4 times daily, and that helped. I hate that was born with rare condition PCD, it’s only last few years have consultant who understands it, found her by looking on line and paying to see information of interests of all local respiratory consultants. Hope you have good consultant. Best regards, Jean x

I was diagnosed when age 32, in 1967,

[Minehead123 in reply to Morrison10]

I think you are remarkable, I really do Jean! x

[sassy59]

Get well soon Jean. Sending best wishes to you. Xxx💕

[Alberta56]

i hope you soon feel better and that your physio is soon well enough to resume treatments. xxx

[Morrison10 in reply to Alberta56]

thanks. Just been reading about respiratory cases in Excess good that medical people are now recognising that treatment is necessary and available for respiratory problems. Good luck, Jean x

[cofdrop-UK]

oh no sorry Jean. Hope the meds work well and quickly

💕💕

[Morrison10 in reply to cofdrop-UK]

thanks, doing all I can, fingers crossed..... Jean x

[Threecats]

I’m sorry to hear you’re unwell, Jean. I hope the meds do the trick and your physiotherapist is also able to resume your treatment soon.

All best wishes to you, TC x

[Morrison10 in reply to Threecats]

thanks, yes I’m fighting it with best antibiotic. Hope you’re ok. Jean x

[Threecats in reply to Morrison10]

I’m glad to hear that. You share the same name and are the same age as my mother, she’s a tough little cookie and a fighter, as you obviously are, too😊

I’m ok thank you. I’m booked in for an angiogram on Thursday that I wasn’t overly looking forward to but then I heard a friend is having root canal treatment the same day and suddenly the angiogram doesn’t seem so bad after all! 😀

Look after yourself x

[Julie14]

hope you feel better soon. Can I ask you about your private physiotherapist is it expensive & how did you go about finding her/him. I have Bronchiectasis & although I try to get as much phlegm up i always feel there’s more.

[Morrison10 in reply to Julie14]

Hi, my physio was well enough to come this morning, moved lot! Found her on Chartered Institute of Physiotherapists. Pay £60 per hour long session. Hope this helps, and you can find one local to you. Good luck. Jean x

[Mooka]

wishing you well soon. I hope the cipro works 🤗

[Ergendl]

Get well soon. Hope your rescue pack does the trick.

[Jk1957]

Hi Morrison . I think it’s great you got that long . Six months without a flare up is great even being on Azithromycin is my experience . I still get a few flare ups a year but I know without being on Azithromycin I’d be getting more . Hope this helps & best of luck . I find nebulising saline & using acapella very helpful in moving mucus

[Morrison10 in reply to Jk1957]

Hi, I Nebulise twice daily with 1 Salbutamol and 2 saline as prescribed by my PCD consultant, use Philips Respironics Nebuliser provided by NHS, and Aerobika. Do some postural drainage, sometimes helps. Only last few years have had Nebuliser etc, the consultant was seeing was useless, so paid to look on line of interests of all respirator consultants in area, and found Dr Sullivan whose very good. Hope this helpful, good luck. Jean x

[leo60]

Hope you feel better soon xx

[watergazer]

Get well soon jean X

[Izb1]

I hope your rescue pack kicks in quickly Jean and you get back to normal asap. At least you have had six months free from the dreaded bugs. Take good care x

[Stratos20]

Wishing you well Morrison. Keep positive. Best wishes Diane x