Apaxiban: I asked for 3 months supply... - Lung Conditions C...

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Apaxiban

Bluebadge profile image
14 Replies

I asked for 3 months supply at a time as you are usually on it for six months. I’ve been on it for a year so they are swapping it to Warfarin now. I set my phone alarm to remind me to take it at 8am and 8 pm each day. Best wishes

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Bluebadge profile image
Bluebadge
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14 Replies
sassy59 profile image
sassy59

Hoping you do well on the Warfarin Bluebadge. I take Rivaroxaban for atrial fibrillation.

Best wishes to you too xxx

Jaybird19 profile image
Jaybird19

Why do they change to warfarin? . That has to to checked all the time doesnt it . .? Involves clinic visits .I had an emer gency op recently and had been told that you had to wait 48 hrs but I dont think the y did . Also been told by lung consultant that it would not be advisable to have general . I have no memory of what was used.so likely to be general.

Bluebadge profile image
Bluebadge in reply to Jaybird19

because I still have 2 PE’s in my lung, despite being on apaxiban for a year. I’m hoping they will go with Warfarin and I won’t need to take it for too long.

Jaybird19 profile image
Jaybird19 in reply to Bluebadge

Dont understand "still hav e " do you mean the scars ? Or actual clots . I have had 2 PE and a lung abscess many years ago . The PE were in 2008 and multiple mini in both lungs in 2018 . I went onto apixaban for life after second PE. As i understand it Apixaban cannot be inactivated as warfarin can but doesnt need monitoring every month (or week )

Bluebadge profile image
Bluebadge in reply to Jaybird19

I still have two PE’s in my right lung a collapsed lower left lobe, recurring pneumonia, cough up blood most days and loads of phlegm. Despite being on apaxiban for a year I’ve developed another clot in my neck pulmonary artery. I’ve never smoked, not overweight and have never had high blood pressure. I don’t care if they have to check me daily. I just want it to dissolve and the one in my neck not to get to my brain.

Patk1 profile image
Patk1 in reply to Bluebadge

Hope its more effective for u

Bluebadge profile image
Bluebadge in reply to Patk1

Thank you. I’ve recently left my job as I just can’t cope any more. This thing is bringing me down and I need to get on top of it.

Jaybird19 profile image
Jaybird19 in reply to Bluebadge

Sorry i only know from my own experience. I was told 4 years ago after my csecond PE that I would have to go onto Warfarin or Apixaban. full time Given the option but no time to evaluate this then . Apixaban was better it seemed so I accepted that .Hope that you can get this solved soon . I can understand your worry.

jmt1 profile image
jmt1

I see from the replies that people are interested why change to warfarin. My question would also be why? I see that there is a clinical reason. Be guide by your clinician I am on warfarin about to change to apaxiban. Good luck!

Bluebadge profile image
Bluebadge in reply to jmt1

I take from this that Warfarin has helped you and you can now step down to a less aggressive drug. That’s good and I hope I get there too. I will be led by medics and pray for the best.

Bluebadge profile image
Bluebadge

I’m told Warfarin may be more effective for me. Everyone is different and it’s not a one size fits all. I think they take your age and weight into account and Warfarin has a longer track record of success for people in my profile. Why are you changing to Apaxiban?

slram profile image
slram

I read that is the nastiest drug to take (fancy name for rat poison) and it is dangerous. Please ask your doctor for a replacement, there are many here in the US. There are many doctors who do not like to even prescribe it.

Bluebadge profile image
Bluebadge in reply to slram

I’be not heard that before. Warfarin seems tried and tested. Can you point me to any clinical research?

slram profile image
slram

i get a daily medical journal and one of the articles was about warfarin and how, like I said, many doctors are beginning to be reluctant about prescribing it as there are safer methods/scripts that can be prescribed. Just start a search yourself and read about it. Am aware of other options here in the US, but not aware of what yours would be. Not familiar.

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