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Hi everyone just need some reassurance !!

Cubangirl profile image
Cubangirl
โ€ข32 Replies

Hi everybody just had phone call from my lung surgeon @ St Barts London who wants me on asap to have lung volume reduction !!! I was due to go to St Barts December 10th 2021 but I cancelled due to the explosion of omicron COVID variant in London at that time ๐Ÿ˜ณso I rang 2 weeks ago to rebook my appointment for spect scan and appointment with lung surgeon to discuss surgery when and where , because previously my lung surgeon had offered to come to yorkshire where I live and do the surgery here ๐Ÿ‘๐ŸผBut now because of huge back logs at our specialist lung hospital he now wants me to go to London have the scan see him and have the surgery all in one go !!! Itโ€™s my birthday today ๐ŸŽ‰and Iโ€™m having a melt down yet again โ˜น๏ธโ˜น๏ธIโ€™m so scared of this surgery but I totally know if need it ๐Ÿ˜ฉ๐Ÿ˜ญ please all those lovely people out there whoโ€™ve had this surgery I need so reassurance ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™ thank you

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Cubangirl
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32 Replies
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ABBA2 profile image
ABBA2

Hi Cubangirl, what a really wonderful birthday gift!! Anything that's been posted about this procedure on the site has been very positive and I'm sure plenty of us on the site wish we were suitable for this. The very best for the operation and a very happy birthday.

Cubangirl profile image
Cubangirlโ€ข in reply toABBA2

Thank you so much for your kind words ๐Ÿค—I do realize that Iโ€™m am exceedingly lucky that I am in the 1-2% group for this procedure ๐Ÿ™๐Ÿคž๐ŸผItโ€™s just such a big deal I worry I wonโ€™t come out the other side โ˜น๏ธAnd I know this can happen during any anesthesia ๐Ÿ˜ณ thanks again I really appreciate all views and comments

Katinka46 profile image
Katinka46

Wowโ€ฆ I can understand your concerns but to have a lung surgeon to act so quickly is wonderful. There are plenty here who have had LVR and I am sure they will reassure you.All the best x

Katinka46 profile image
Katinka46

P.S. Happy Birthday!

Cubangirl profile image
Cubangirlโ€ข in reply toKatinka46

Thank you so much ๐Ÿ˜Š xx

tomc profile image
tomc

I can`t comment on LVR But I can say many happy returns of the day HAPPY BIRTHDAY!!

Cubangirl profile image
Cubangirlโ€ข in reply totomc

Awesome thank you ๐Ÿค—xx

skischool profile image
skischool

Having been through the selection process and spoken to a thoracic surgeon i can assure you Cubangirl that if the surgeon had any doubts about your ability to survive and prosper from the procedure he wouldn't consider doing it in the first place.Sadly my lung function reserve didn't meet the criteria for the anaesthesia by the surgeon i saw so he has declined to operate.

Wishing you the best if you decide to have it done and if you do i am certain it will give you a far better quality of life in the future.

Ski's and Scruff's

๐Ÿ™‚๐Ÿ˜ป

Cubangirl profile image
Cubangirlโ€ข in reply toskischool

Thank you so much ๐Ÿ˜Š it really does help to get other peoples perspective ๐Ÿ‘๐Ÿผ

CDPO16 profile image
CDPO16

Perhaps short notice but better than having too long to dwell on it. Hope everything goes well for you.

Cubangirl profile image
Cubangirlโ€ข in reply toCDPO16

๐Ÿ‘๐Ÿผ๐Ÿ˜ thank you

Jane2005 profile image
Jane2005

Hope all goes well & Happy Birthday xx

Cubangirl profile image
Cubangirlโ€ข in reply toJane2005

Thanks ๐Ÿ˜˜ I already feel calmer ๐Ÿ‘๐Ÿผ๐Ÿ˜

Damon1864 profile image
Damon1864Volunteer

Hi Cubangirl and happy birthday, what a gift you have been given I would certainly grab it with both hands. I hope my birthday present will be as good. All the comments on here about the operation have been good. I hope you ta kk e this chance and good luck. Please let us know how you are doing. Have a lovely day and take care ๐Ÿ˜Š Bernadette and Jack ๐Ÿ• xxxxxx ๐ŸŒน๐ŸŒน

Cubangirl profile image
Cubangirlโ€ข in reply toDamon1864

Aw thank you such kind people on this forum ๐Ÿค—god bless you all ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉxx

Cubangirl profile image
Cubangirl

Aw thank you ๐Ÿ™ such kind people on this forum ๐Ÿค—god bless you all ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉxx

Fircone profile image
Fircone

Happy Birthday Cubangirl. Iโ€™m hoping I may be suitable for a LVR. Iโ€™ve already had a scan and tomorrow (my birthday) Iโ€™m having other tests and blood gas exchange done. Good luck xxx

Cubangirl profile image
Cubangirlโ€ข in reply toFircone

Awesome sending much luck and good wishes ๐Ÿ‘๐ŸผMany happy returns for tomorrow ๐Ÿฅณ๐ŸŽ‰

Fircone profile image
Firconeโ€ข in reply toCubangirl

Thank you๐Ÿ˜Š

Alberta56 profile image
Alberta56

Happy birthday. Good luck and best wishes. I'm not surprised you're scared of surgery. I sympathise. xxx

Cubangirl profile image
Cubangirlโ€ข in reply toAlberta56

I feel more positive now than I did this morning ๐ŸคชIโ€™m still scared but hopeful ๐Ÿคž๐Ÿผxx

Morrison10 profile image
Morrison10

Iโ€™m puzzled by having LVR, does this actually reduce size of one or both lungs. Whatever, having surgery quickly is good, hope it goes well. xx

Cubangirl profile image
Cubangirlโ€ข in reply toMorrison10

Yep they cut out the worst of the bad and try n leave you some good bits ๐Ÿ˜๐Ÿคชboth lungs done at the same time ๐Ÿ˜ณ

Caspiana profile image
Caspiana

Hi Cubangirl. ๐Ÿ˜Š

Happy birthday ๐ŸŽ‚to you!! This opportunity of lung reduction surgery has come at the time of your birthday. A special gift I dare say to embrace the chance given to you. Grab it and live the best life you can!! Keep your chin up and your face forward. You can do this! ๐Ÿ˜€

Many best wishes,

Cas xx ๐Ÿ™‹๐Ÿ•

Cubangirl profile image
Cubangirlโ€ข in reply toCaspiana

Awesome words ๐Ÿ™thank you so much ๐Ÿค—๐Ÿค—they brought tears to my eyes ๐Ÿ˜ญI will do exactly chin up face forward ๐Ÿ‘๐ŸผMy dad always said horses donโ€™t plough backwards only forwards ๐Ÿ˜xxxx

49dibs profile image
49dibs

I have had LVRS on both lungs in the space of 2 years at Barts and have never regretted the decision.The worst part for me was the removal of the chest drain. Otherwise there were no complications and the nursing care was excellent

So would strongly recommend you have it done and get the best birthday present ever

Cubangirl profile image
Cubangirlโ€ข in reply to49dibs

I think we chatted before ? Who was your surgeon at Barts ? thanks for your very positive suooort ๐Ÿ‘๐Ÿผ๐Ÿ˜

49dibs profile image
49dibsโ€ข in reply toCubangirl

David WallerApologies if I have repeated myself

Cubangirl profile image
Cubangirlโ€ข in reply to49dibs

No no itโ€™s fine I just remember you telling me that you had your surgeries 1 at a time ๐Ÿ‘๐Ÿผ๐Ÿ˜ David Waller is also my surgeon ๐Ÿ™so that makes me feel confident xx

49dibs profile image
49dibsโ€ข in reply toCubangirl

Well he is a very respected man and the staff don't mess him around!!

Kristicats profile image
Kristicats

I have to say Iโ€™ve only heard really good reviews for the procedure you have been

offered. It sounds like a special birthday present for you. Happy birthday and good luck with whatever you decide. Cx๐ŸŽ‚๐Ÿฅณ

Cubangirl profile image
Cubangirlโ€ข in reply toKristicats

Thank you and your all correct it is a gift ๐Ÿ‘๐ŸผThank you all for enabling me to see that ๐Ÿ™๐Ÿ™ xx

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