hi guys thanks so much for your prompt responses 👍🏼I have suffered from copd , asthma and bronchiectasis for the last 14 years 😳obviously becoming worse over time !! I had left lower lobe reduction surgery at St Barts in London 2022 which was to a degree successful . But over the last year my health has declined rapidly so much so that I now have carerer for most of the day ❤️🩹👍🏼but this episode of acute respiratory acidosis was a bit of a shocker !!! They have told me I will need Bipap at home ☹️and that this could happen again 😭in all honesty I felt the Drs were more interested in getting me to agree to DNR order 🤷♀️why would they do this when I was at my most vulnerable and quite confused I didn’t think I had the where with all to make such a choice 🤷♀️🤷♀️🤷♀️🤷♀️🤷♀️
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Cubangirl
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Hi darling. Don't be upset about having a bipap at home, it has been an amazing help to me. If you use it you will probably not have a recurrence, I haven't. Reread my last answer to you (sorry just on my way to bed!) and PM me if you would like to xx
Hi leo60 I had cpap but couldn’t manage the 4 hrs per night stipulation !!! Kept taking it off in my sleep 🤷♀️so what’s bipap gonna be like ☹️I guess it’s even more difficult to manage
Once on bipap you should be OK.itll take time to get correct pressures and best mask4u and u will feel better for it.As for DNR don't agree if it's not what you want xxxx
I was in hospital November 2021 one Dr I saw was really horrible he kept going on about DNR I said I wasn't signing anything I could hardly sit up yet he said if I was to go walk outside the hospital had attack of anything I wouldn't be put in I.C.U. I WOULD NOT BE RESUSCITATED so I might aswell sign I said no I was in hospital for 8 nights then they needed the bed I was sent home with some paper saying I agreed verbally to DNR which I hadn't it took 6 months of fighting for it to be taken off but it was taken off in the end I was in bed at home for another 2 weeks before well enough to do anything .
I only found out recently that doctors do not need your permission to put a DNR on you even if you're against it. It's very frightening that they have that power.
I only found out when my sister in law died in hospital after having a stroke. They didn't ask her permission, or my brother's but they let her pass anyway. My brother challenged them but obviously it was too late. I've since Googled it to see if there was anything that he could do but apparently not.
I know but to be fair, in the case of my sister in law, her stroke was severe and her quality of life would have been non existent if she had survived. A gentle discussion with my brother before she died would have made the situation a lot easier on him rather than the shock of getting that phone call in the middle of the night.
I do agree with you that it should be our choice first and foremost though and I'm glad that you managed to get yours removed.
How shocking! I guess they're trying to get rid of us. To go on about signing a DNR if someone does not want it is really unforgiveable. I'm all for assisted dying if that is the persons' wish, and to be able to chose to die with dignity, but real choice is the key word. Sorry, I know nothing of Bipap but do wish you well x
Hi, try not to be too hard on the Drs, I`m sure theyy did not expect you to sign on the dotted line there and then. They are often put under pressure by patients or family members to make difficult decisions. As others have said the Bipap should make a big difference and DNR can then safely be forgotten for a while, hopefully a long time. Take care and try not to worry, Chris.
I would phone the helpline tomorrow, they should be able to reassure you hopefully. Yes, once you've had an episode of acute respiratory acidosis, the consensus is that you'll be prone to having another one but having experienced it myself, all that I can say is that should it happen again, I'll be more alert to what's happening and quicker to get help.
As others have said, a Bipap mask will help you breathe again so you shouldn't get as ill as you did last time and ignore the DNR conversation and prove them wrong!xx
Hi Cubangirl. I was told I could cancel the DNR at any time. So if you feel it’s not right for you I would ring them up and cancel. I may even cancel mine. I have been thinking about it.
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Respiratory Nurse update
Query on Respiratory Physiotherapy
At last the end of a scary week spent mostly on a bipap machine to reverse acidosis and high blood co2
Interesting chat with respiratory nurse.
