Had the CT scan of my lungs

[ez2nvmorgan]

Hi everyone

I had my high resolution scan yesterday and saw the lung specialist afterwards. She told me that my lungs is not stable anymore there are further changes. She didn't seem to be concern about the cough, but the plan is to restart me on mycophenolate at 250mg twice daily and monitor me closely, as I query query had developed anaemia when taking it before.

I am feeling so scared of the unknown, what to expect etc.

Thanks

[Damon1864 Volunteer]

Hi I'm so sorry you didn't get the news you wanted, but please try to stay as positive as possible you have endless support here. Have a lovely day and take care 😊 Bernadette and Jack 🐕 xxxxxx

[ez2nvmorgan in reply to Damon1864]

Thank you

[Katinka46]

I am glad you saw your consultant so promptly, and that you didn’t have to wait for the result, but obviously it is not the news you wanted. I do know that Lupus can have a detrimental effect on lungs. I am concerned that your consultant is not helping you more with your cough. Can you gently nudge for more help? I read your posts on the Lupus site. It needs to be addressed. All the best

[ez2nvmorgan in reply to Katinka46]

Thank you, I will continue to try also I will see if my GP will do something now

[Alberta56]

Best wishes. At least you know what's going on now and I hope you can get the cough sorted.

[ez2nvmorgan in reply to Alberta56]

Thank you