Nightmare of a few weeks : What a time... - Lung Conditions C...

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Nightmare of a few weeks

Barclay1560 profile image
20 Replies

What a time l’ve had , my magical mice on the lungs have been playing violins for the past few weeks leaving me stuck firm on the bed with exhaustion ....bed ...ha ....our metal bed attacked hubby’s knees one night as he ping ponged from his side to unit....to wardrobe...bed frame ...chest of drawers ....and hit the wall , me unable to shout out ‘ wake up you idiot ‘ ( in a loving voice l might add 😈) finally he got to the bathroom only for my son and l having to get out of bed and ‘ collect ‘ him off the floor as he’d fallen and head butted the sink ...braking his ribs ( again ) on the bathroom drawer unit then fallen backwards hitting his right kidney on the shower seat ......you should see him black, blue and lumpy !

I hope your all well and had your covid jabs , mine set of my heart condition and left me in bed for four days , which wasn’t to bad , unfortunately hubby was ill for six weeks ! With ambulances coming and going , consultants and the makers of the oxford shot trying to sort it all , he was soooooo ill......vomiting, upset stomach, headaches, vision loss, flu feelings so bad he couldn’t stand up , couldn’t eat and couldn’t sleep , it righted itself in the end but at its worst it was frightening.

Im now back to my consultants as they have found ( they ....being hubby and l ) that the reason lm passing out on the loo is because of some nerve being trapped and the cold ( bloody freezing more like dripping with sweat for 2-3 hours ) is from this as well .....so my GP moved himself as speaking to him on the Monday at 5 pm the consultant called at 4 pm on the Tuesday .

So bearing in mind l’ve been struggling for around 8-10 weeks with my heart, lungs and colitis lm now seeing all my consultants ....not in one room ...thank god .🙏🏻🙏🏻🙏🏻

Im trying to keep my head above water...... health wise at the minute, l’ve not been out since Christmas , been into Plymouth for at least 18+ months and lm just pottering from sitting legs up on my bed to doing a little bit in the house to back to the bed again.

Our bed is being replaced today so no more ping ponging for hubby .....the shower room is being done in about 3 months time ......so alls well in the house of falls, coughing and bruises ..........for the next 2 hours until the beds sorted !

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Barclay1560 profile image
Barclay1560
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20 Replies
sassy59 profile image
sassy59

Oh dear me Barclay😳what a time you’ve had. So sorry to hear about your poor hubby too of course but let’s hope good things will happen now. That bed definitely needs replacing. At least the consultants are seeing you which is good.

The vaccinations have caused problems for some sadly but hoping you’re ok now.

Take care dear lady. Best wishes to you. Xxx💖🤗

Barclay1560 profile image
Barclay1560 in reply to sassy59

Sorry l’ve taken so long to reply but my iPad started to play up on me .Hubby’s ok now , two new beds in place so far and l’ve spent another 48 hrs laying flat fighting colitis and heart .. ....summers coming soon so that’s somth8ng to look forward to .

sassy59 profile image
sassy59 in reply to Barclay1560

No worries Barclay. Wishing you well as always. Take care xxxx

CDPO16 profile image
CDPO16

Sorry that you and your husband are having such a difficult time. I hope that things improve for you both soon. Best wishes x

I'm sorry to hear that you have been having a rough time of it. Don't forget to get the vat taken off your bed and new bathroom.

Kristicats profile image
Kristicats

Hope all is well now and your consultants get you sorted soon. Cx

MELNEL profile image
MELNEL

😱😱 oh my, what a nightmare come true.So sorry what you been through...and your hubby as well.

I hope you can get a new bed, then this one is definitely fit for replacement 😋I hope everything can be sorted and getting better in time again. Wishing you well and best wishes 😃🌹🌹❤️

Ergendl profile image
Ergendl

What a chain of events, Barclay! So impressed that you're managing to keep such a positive take on it all. Good luck with the consultants and all the other changes in the offing. Hope the hubby's injuries don't take too long to heal.

MoyB profile image
MoyB

Well, I know that was all pretty awful, but the way you wrote it did make me chuckle! I do hope your poor hubby is ok now and on the road to recovery. So glad to know you used a 'loving ' voice to call him an idiot. I'm sure it made all the difference! Lol!

Those pesky mice on their violins! They are such a pain in the whatsit, aren't they? I'm sorry you are not feeling very good at the moment and hope you soon feel better.

xx Moy

Dedalus profile image
Dedalus

What a nightmare for you all. Hope things now improved and all round getting better.

Alberta56 profile image
Alberta56

What a time you've both had. I hope things are getting better and that the new bed is proving it's worth. Best wishes to you and hubby and extremely ill wishes to the magical mice. xxx

watergazer profile image
watergazer

My word what a time you and your hubby have had. Hope the new bed stops the ping ponging around. X

Barclay1560 profile image
Barclay1560

Thank you everyone for your care and concern ....we’ve all had an interesting couple of weeks here ....new beds now up and my goodness it's comfy and high of the floor .Hubby got hit squarely on the forehead with a large round candle that he managed to knock off the hall wall 12 feet above him 😫😫😫😫 in his bemused state of mind he threw a rubber bucket up the stairs but instead of in front of him ...he threw it straight up ...vertical knocking a candle stick off the wall and the candle to attack him with a hell of a band leaving a nice round red mark and stars in marks eyes .

We are now having another chair lift fitted ( outside steep steps ) a new garden path and wider steps done to our decking and a new bathroom .

At least a new bathroom may just stop hubby kissing the toilet base when he decides to throw himself into this room .....why does he do this ....if l knew ld be a wiser woman .

Hope your all coping and managing to see more of your families now , but take care ,stay safe .......Ami xxxx

CDPO16 profile image
CDPO16

What a wry way of looking at things you have, it surely helps you through your difficulties. Certainly makes for an interesting read.Good to know that your new beds are comfy. I hope that all the other work you are having done at your home will be a big benefit too.

Best wishes to you and your hubby, Carole xx

Barclay1560 profile image
Barclay1560

Well, thank you everyone for your kind words ....it’s been manic here , lm thinking off running away to Australia except l don’t like spiders .First hubby's been kissing the bathroom floor again , someone’s taken a brand new 30 foot ( folds into 4 ) multi stepladder and won’t bring it back 🤬🤬🤬🤬🤬🤬🤬🤬🤯🤯🤯🤯🤯🤯 now hubby’s hand is going down 😣😖😫😩😤.

Hubby has only a left hand as he cut his right dominant hand off in an accident, he’s always been very worried if anything ever happened to this hand he’s in big trouble .........well it has .😱😱😱😱😱

First his middle finger locked with trigger finger ....then his little finger started to lock ...now he’s getting problems with his index finger ....we have bought a trigger finger brace but having had it on 7-10 days he having more pain....so we need help.

Called our doctors who said they would speak to him ......nothing .....called again and get a text from another doctor saying he’s booked in for physio on the 9th June ......no....no....no

Hubby’s an ex mountain medic and lm an ex nurse if between us we can’t see that this is urgent then we both need our heads examined .

He cannot wait two weeks for a steroid shot ....he’s in lots of pain, dropping what little he can hold and with his Alzheimer’s and other problems is loosening the plot .

It’s barbaric what they are doing to him , l’ve got him going from anger to tears and back again here because he’s not taking it in and cannot understand why they won’t help him , lm disgusted with them , what is he supposed to use to eat, drink , wipe his bottom with in a few days time ....l cannot be his 24/7 nurse as my mice won’t let me .

Both my son and l have had our second covid shots .......which we should of had about two months ago ....lm feeling like my eyeballs are coming out of my head and my glands in my neck are about to John them .......mmmmm May be l could string them on string to make a unique necklace .....🤔🤔🤔🤔🤔.

And to crown it all it’s getting warm.......oh goody- goody you all say ...l say roll on Christmas as now both son and l become prisoners in the house, curtains closed and fans on ?

Your probably asking yourself what’s the silly moo doing this for ?

POTS. our heart condition ( and others ) we are unable to go into the sun or heat unless we want to sweat like a boxer ( all over ...everywhere ) for hours and hours causing loss of water and blackouts ......oh do l love the summer ...🥵🥵🥵🥵🥵😡😡😡😡😡 not bloody likely 👎👎👎👎👎

So in all this our new bed arrived and is good , unless you discover the middle post that wasn’t on the last bed and then spend 30 mins hopping round the bedroom in a state of painful Ecstasy Not knowing if you should laugh or cry

Hubby in his effort to help slid top to bottom of the stairs again in his boxers ...no lm not kissing it better ...why oh why doesn’t he use the stair lift ☹️ Like normal people who have his kind of problems would do .....mmmmm, l suppose the answer is Normal !

CDPO16 profile image
CDPO16

Oh Barclay I don't know what to say about all this. I hope very much that your husband gets the treatment he needs sooner rather than later. There seem to be so many GPs providing such a rubbish care for their patients now. They really should take both your professional experiences into account. Is urgent care an option for him? I do realise thought that this may not be realistic.Sending you a hug from another former nurse xx

Barclay1560 profile image
Barclay1560 in reply to CDPO16

Thanks , tomorrow lm contacting a special complaints dept of the NHS ....one of the things the doctor told the receptionist was this ‘ l’ve spoken to mr A and triaged him ‘ 😮😮😮😮😮 liar...liar pants on fire .He did not speak to my hubby on the phone ......strike one .

He did not see my hubby so how could he of triaged him ......strike two .

Did you know that the governments target is to get you an appointment with a doctor within 48 hours .......hubby’s been offered a telephone call in 11 days, which means he still will not be seen by a medically trained person.

If the physio decides he needs steroids he then has to call the doctor .....and if he thinks it’s not important AGAIN🤬🤬🤬🤬 he can then make hubby wait another month or more to speak on the phone .....then he has to contact the hospital to see a consultant or make an appointment to have the steroid shots so badly needed.

I cannot understand what is going on in this doctors head ...the receptionist did not tell the doctor ALL the problems , he wasn’t told of hubby’s fears etc .

Hubby’s in pain , he’s dropping things ,can’t pick them up , can’t carry items and it’s getting worse day in day out .

If l have to l will go to a government office about this in Westminster....how dare they play games with my husband and lie about contact with him...l will give them care in the community ......buns laced with piccosulphate and figs angry Im furious.

CDPO16 profile image
CDPO16

You are right. Good luck xx

CDPO16 profile image
CDPO16

You are right. Good luck xx

Barclay1560 profile image
Barclay1560

Well, well, well, .........woman here kicked butt.👍👍👍👍👍👍After a long conversation with the local department that deals with problems ( and rates all doctors surgery/ practices in the uk ) the next day first thing hubby got a call from the practices main doctor .......😧 who agreed with me he needed help now , they spoke for sometime , actually listened to what treatment ld already done .....massage and a proper splint .....the outcome is they are coming to inject him with steroid this week ( ex nurse here ) Omg the doctor was so sheepish talking to hubby ........mmmmm

Hubby’s so pleased , l’ve never lost an argument yet , well not argument exactly but if l know lm right l don’t just let people get away with it , having said this .........l always check things out even if lm sure l know the answer on the net first ,especially if it’s points of law in shops, or with people doing jobs for you etc......then armed with the correct knowledge l let them have it .....40 odd years l’ve been doing this , not just with my close family but all sorts of people .

I’ve even as a none qualified solicitor ( l did company, shop law ) taken a judge to the courts of appeal in London to prove he exceeded his powers ....and won .

I did all the legal work myself all the bindings the lot .

Never think because your not trained at a certain job you can’t achieve anything .....l even did my last divorce (20+ years ago ) when the solicitor was paying kept messing about , fired him ...wrote a clever letter to my ex’s solicitor because he was playing too......divorced in 6 weeks ..............

What knowledge l have l use for good , housing, battered wives, kids .....doing another wake this week ☹️ but better to help your fellow man than turn your back on them ......because one day it could be you facing the backs of other .

Having said this had my second covid and just spent three days in bed with swollen glands and such leg pain l couldn’t stand ......hay-ho that’s life win some loose some ........mmmmmmm, wonder if next time l could ask for the loss to be on my weight !😈😈😈😈😈😈

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