Medication Enquiry

[Wolverton]

Medication Enquiry

Hi,

would be interested to know if anybody else is on 300mg of soft capsules nintedanib?

If so how are you managing?, many thanks

[Suzie42]

Just seen your post. Yes I was on 300mg for 2 months but my liver function went up and was out on 200mg in August. I seem to be able to stay on it for 8 weeks before having to have a couple of weeks break due to side effects I'm having. Just started again this week after taking another 2 week break. How are you doing on it?

[Wolverton in reply to Suzie42]

Thank you for your response. Been on it since May but the explosive effects are getting harder to manage. Blood tests are not going to the correct hospital and no hospital appointments until April next year, so a bit disconcerting

[Suzie42 in reply to Wolverton]

Yes I'm similar to you with side effects. I get blood test done at my GP and they email them to the Brompton for me, so is efficient. I have a clinical nurse specialist assigned to me and I can speak to her whenever I need to. I have only had one tel consultation with consultant when diagnosed and my next is video link next April. Let me know how you get on going forward and take care

[Wolverton in reply to Suzie42]

Many thanks, will keep in touch