Beware Fostair: My COPD nurse... - Lung Conditions C...

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Beware Fostair

micox profile image
16 Replies

My COPD nurse prescribed Fostair 3 weeks back. She stopped it yesterday because, although effective for breathing relief, it made my essential tremors ten times worse. But I misunderstood her and took another dose yesterday evening (I can't pick my new prescription up until next Monday). I hadn't linked it but over the last few days I'd had annoying muscle pain and this morning I awoke to horrendous pain in both thighs and biceps/triceps. I only moved at all in great pain.

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micox
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16 Replies
peege profile image
peege

Crumbs. That's an awful reaction. P

sassy59 profile image
sassy59

Not nice micox. Hope things improve for you soon. Xxx

CDPO16 profile image
CDPO16

Sorry you have had such adverse effects from the fostair but I'm glad that you reported this to your nurse. I hope you don't suffer too much before your change in prescription is ready.

2greys profile image
2greys

I used to get tremors from Fostair, picking up a full pint at the pub was a problem, I had to bend down and slurp a bit first. But my body has got used to it and no longer a problem, the ability to breathe overrode any worries I had about 'having the shakes'.

micox profile image
micox in reply to 2greys

Hi 2greys. The main problem was I was already battling with essential tremors. Fostair made them 10 times worse!

2greys profile image
2greys in reply to micox

My point was that it the side effect subsided after a few months. Obviously if they are intolerable then something has to change.

O2Trees profile image
O2Trees

Hi micox - it feels like Ive heard quite a few complaints from people using Fostair. I use Symbicort and seldom hear complaints about that. Has your GP put you on something else to replace it? If not, you could try asking your GP for a medicine review - which would probably have to be by phone right now. But maybe you have a sustitute now. Good luck :)

I hope the shaking & the pain ease off now you’ve stopped the Fostair. That’s such a nuisance, when it was helping your breathing so much. But sometimes the side effects make life too difficult.

I’ve also got ET, though I’m not on Fostair. It began mildly about 15yrs ago but in last 2yrs is really dreadful. I can hardly use my left hand. I can’t carry anything hot (too dangerous) or use sharp utensils, & can only use my right hand to eat with a fork or spoon. Luckily that’s my dominant one!

micox profile image
micox in reply to

Yes Hanne62. I had been a sax/clarinet/flute player since my teens but ET led to having to give up altogether.

Becky130777 profile image
Becky130777

I have only been in Fostair the last few weeks. Not noticed any symptoms but will bare this in mind.

HungryHufflepuff profile image
HungryHufflepuff

Fostair caused me to have terrible tremors, I found it very difficult to eat because of dropping my cutlery, and it didn't help my breathing at all. I had lots of side effects but no benefits from it and was changed onto something else after six months.

watergazer profile image
watergazer

Thanks for that. X

Grayjay profile image
Grayjay

Hi, I switched from Seretide to Fostair due to muscle cramps. No difference ,so my GP put me on Elipta Trellegy which is a once a day non Steroid powder inhaler.

Touch wood , no more cramps. I also take a vitamin D3 supplement called Desunin.

skinnylizzy59 profile image
skinnylizzy59

Hi micoxx, I'm very interested in your post as I've had bad pains in my upper arms and legs and I could.only walk with great discomfort. I was prescribed steroids which I took for a week and the pains in my arms disappeared which meant I didn't have polymyalgia. What are your 'body tremors'? Because I also get uncontrollable shaking and seizing up of my legs but I don't know what triggers it. I wish you well. Take care. Love Lizzy x

skinnylizzy59 profile image
skinnylizzy59

Sorry , micox I meant to say I have , COPÐ and take lots of drugs including Fostair..

ninelives profile image
ninelives

Sorry to hear that you have had a reaction to Fostair-do hope your medical team find something that will work for you without horrid side effects.Uniphylline gives me the shakes so I sympathize.

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