More Breathless than normal and low stats on exercise

[Johnsel]

Hello everyone hope you are all as well as you can be. Is it possible to have an exerberation (spelling) without having a cold? John has been more short of breath lately and when he goes on our treadmill at home, with 5l of oxygen his stats go down to 85 and mainly come back quicker to 93/94 but taking a bit longer lately. His portable oxygen only goes up to 5l so at a loss to what to do about it. He started taking steroids again for a week (which he hated) but his breathing didn’t improve so was wondering if this is what they call an exerberation. Carole

[sassy59]

Hi Carole, John could have some sort of infection so maybe should see a doctor as his breathing hasn’t improved. Best to get him checked over.

Wishing you both well. Xxxx

[Johnsel in reply to sassy59]

Thank you Carole hope you and Pete are OK also. 😙

[sassy59 in reply to Johnsel]

Not too bad thank you. Love and hugs. Xxxxx

[2greys]

Although this says for COPD flare-ups, I can see no reason that it does not apply to IPF as well.

"A flare-up might be triggered by an infection or there may be no apparent reason."

blf.org.uk/support-for-you/...

[Johnsel in reply to 2greys]

Thank you for the information 2greys. Hope you are feeling better and your not working too hard.😴🥰

[2greys in reply to Johnsel]

Yes, improving all the time thank you and now at least 5 days of rest.

[barbs47]

Hi Carole this is exactly how I’ve been. I’ve done 5 days of steroids which have made absolutely no difference. My doctor could hear crackles and wheezing but no infection. She did say about the weather affecting breathing which I know only too well. She also wondered if I had a small hole in one of my air sacks which apparently can happen with emphysema. Hence she is ordering an X-ray and I’m also seeing the chest specialist. I have an appointment with the oxygen nurse next Friday too. I’ll let everyone know when I have any outcomes Barbs x

[Johnsel in reply to barbs47]

Thank you for your reply barbs47 and good luck with your oxygen nurse appointment. Carole 😘

[CDPO16]

Hi, I have had non infection exacerbations when something has caused inflammaton. I usually have no idea what the cause is. Probably best to get your doctor to check John.

[Nottobad]

I once had a what the community respiratory nurse said was a exacerbation caused by paint fumes.