Hi everyone,
My friend is upset as he has just had a call from his oxygen nurse who wants to put him on an oxygen concentrator. The reason for this is because she says he has been ringing his oxygen supplier too many times. He's rung them more times this month because he's had problems with his portable liquid oxygen flask.
He's upset because he thinks he will now only have a concentrator connected to the mains so won't be able to go out of the house. At the moment he is on 3L/P/M for pottering about and turns it up to 5/L/P/M when he's on his treadmill. He has Idiopathic pulmonary fibrosis and is on the transplant list.
He goes to pulmonary rehab, Reiki Healing and likes to walk to keep his fitness levels up which he's been asked to do by his transplant team. Now he thinks he won't be able to do any of this.
Is there anyone with IPF or COPD who has a concentrator in the house but also has portable liquid oxygen to get out and about? My friend has really gone down in the dumps and I don't know what to say to buck him up a bit. He's seeing the nurse tomorrow and I'm hoping he can maybe have both a concentrator and portable oxygen so he can still get out and about.
Lesley