Severe STAGE 4 COPD

[Trt2154]

Hi my husband is having very bad trouble getting his oxygen levels above 84 even on oxygen cant move more then a few feet without oxygen. They are taking him into a hospice today for respite but he is adamant that he wont come back home i am not being told what his prognoses is i feel so isolated.

[Damon1864 Volunteer]

hello what an awful time you are having, I am sure your husband will come home,but you need some rest too. You take care and demand to know what is happening. Let us know how you get on. 😐 xxx Bernadette

[Trt2154 in reply to Damon1864]

Thank you Bernadette yes i will try and rest as im not too good myself xxx will keep you updated

[Watfordgirl]

Hello, I'm so sorry your husband is so ill. It must be so upsetting and exhausting for you both, and this is why he's being offered respite care. He'll be looked after and his medical needs can be assessed at the same time. You'll be able to get some much needed rest too and can spend time with him while he's in the hospice.

It isn't always possible for doctors to know the exact prognosis of patients but once your husband is in the hospice, they will be able to give you a little more idea. You'll also be supported and I hope will feel less isolated. Thinking of you, Sue

[Trt2154 in reply to Watfordgirl]

Thank you so much for your reply Sue cheers Teresa x

[O2Trees in reply to Watfordgirl]

Great reply Sue.

[madametobacco49]

Oh dear--our thoughts and prayers are with you--He will be home again--He is frightened--I get that way to--It can be paralyzing-Please take care of you too--so you can be there for him -Much Love MmeT

[Trt2154 in reply to madametobacco49]

Thank you x

[Brishe1]

My husband spent ten days in a hospice for respite and he loved it and will go back happily. They will speak very openly to you and I am sure will take time with you both as they assess him and make him as settled as possible. Take whatever they offer, my husband has Parkinson's as well and they did massage on his arms and gave him some rest from the tremors.

They really can make a difference, not necessarily in treating the actual disease but in helping with symptoms and everything that goes along with it. Good for you as well as you can relax a bit when you see him so well cared for.

[helenlw7]

I'm sure your husband will come home from the hospice, if that is the best thing for him. The Drs will be able to assess his medical needs while he's there, and make sure he is having the appropriate medication. My dad went into a hospice for a short time to give my mum a well deserved rest. He had some of his medication changed. It is hard being a carer, but you don't always realise the toll it takes on your body. My mum and dad both benefited from the short break.

Helen

[Trt2154 in reply to helenlw7]

How long was he in there for

[helenlw7]

Three weeks I think

[jackdup]

Wishing you and your husband the best and will say a prayer for both of you.

[Trt2154]

Thank you