Ccam baby

[Bobblebaby]

My little unborn baby has been giving ccam diagnosis and I'm very scared about the outcome it's very rare I'm unsure what the outcome will be

[2greys]

Hi Bobblebaby. I am so sorry that you are going through this, you must be very distraught. None of us us here are medically trained. However perhaps things will not be quite so dark. I have found some online info. It can be treated.

uhs.nhs.uk/OurServices/Chil...

chop.edu/conditions-disease...

[Yatzy in reply to 2greys]

Thanks, 2greys. That’s very helpful. I’m sure this clear information will help you to understand more and to get through, Bobblebaby ❤️

The very best of luck to you and your baby 💕

[Bobblebaby in reply to 2greys]

This is the website and the only one I will look on and after reading into it abit more I'm feeling positive that she could fight this. X

[sassy59]

How very worrying for you, I hope your baby recovers well and l will be keeping you in my thoughts and prayers. Xxxx

[Hidden]

A lot of people will be wishing for the best possible outcome for you and your baby Bobblebaby and the rarity of the condition will ensure that the best medical team possible will be standing by if needed.

[CELAT06]

So sorry to hear that, I’m not sure what this is but being diagnosed so early will, hopefully, give a good chance of early intervention to make things better for baby and you. All the best for you both. Thinking of you. XXX

[JANET127]

Prayers and Hugs.....Janet127

[Bobblebaby]

Thank you everyone for you kind words I'm feeling very positive after reading into it abit more its a very rare lung decease that affects 1 in 11,000 so hopefully my little girl will be a fighter ♥️

[illawarra]

Thoughts and prayers for you and baby. I do hope it is one of the bubs that it sorts out before birth and no need of any intervention. Best wishes to you and your bub. xxx

[Ergendl]

All the best for you and baby. Being aware of the problem at this early stage gives the medics time to work out the best way to treat it. Hugs.

[watergazer]

Sending you hugs and prayers for you and your baby girl. Having read 2greys link, the outcome looks promising. I am also on 2 pins as my daughter in law is currently 16 weeks into her pregnancy after 3 miscarriages- the last one being an Edwards baby x

[Titchykath in reply to watergazer]

I had a baby girl 30 years ago , she had Edwards syndrome. She was stillborn at 31 wks, but I did go on to have my youngest son who is 29 .

Everything will hopefully be fine. 💛👱🏻‍♀️💛

[Titchykath]

Looking at the link positivity is the way forward, take care 💛👱🏻‍♀️💛

[Bobblebaby]

I have been for an appointment today turns out she doesnt have ccam which is so disappointing she has cdh with a 50/50% survival 🙁

[Izb1]

So sorry to hear your news Bobblebaby, lets hope they can give you some good news on dealing with this ccam, sending love and hugs to you both x