Infection again

[Jools7770]

I have had infections one afterthe other and am feeling very low. 2 weeks of Amoxicillin gets it gone but straight away another! Any ideas friends please?

[Hidden]

Amixicillin is not finishing the job. It is as effectove as smarties but cheap. Get yout GP to get your sputum tested and then give you the right antibiotic in a high enough dose for a long enough time. As you have been gaving these infections for long enough for whichever bug it is to get settled in the nooks and crannies, probably two weeks. If you have bronchiectasis, definitely 2 weeks.

[Jools7770 in reply to Hidden]

I have had sputum tested! And been on amoxicillin for 14 days - then clear for two weeks then another infection! I have flu like symptoms aching all over and pale green sputum. I can taste the difference! I know it’s an infection 😱😱😱

[Hidden in reply to Jools7770]

There are antibiotics more effective than amoxyl. It's not completing the job. I suggest that you go back to the GP.

[Jools7770 in reply to Hidden]

I was given something else after having pseudonomas but it causes deafness and tinnitus and I am already partially deaf and don’t want to be totally deaf!

[Jools7770 in reply to Jools7770]

The Doxy stuff made me ill - goodness I’m a Mia year ole bat today! In bed watching the tennis!

[Jools7770 in reply to Jools7770]

That was supposed to say moaning!

[Hidden in reply to Jools7770]

The pseudomonas is probably still there. Once in there it hides. Amoxyl is not effective against it. Do you have a consultant? If so I suggest that you call their secretary and ask them to tell the con what you are struggling with. If you cannot take oral antibiotics for various reasons you may need some IV to deal with it. You need expert help for this.

[Jools7770 in reply to Hidden]

I saw Professor Loebinger and he said pseudonomas had gone... I will phone Sarah tomorrow and see what he suggests.

[Hidden in reply to Jools7770]

Good idea.

[Starstream]

I am like this, but have stopped taking the antibiotics as realised not always a chest infection. Short of breath, wheezy and peak flow down, noisy mucus. I am just taking Prednisolone now when I get like this, which is every 3-4 weeks. Clears up with the pred.

[Jools7770]

I really don’t like this Bronchiectasis today 😢

[Hidden in reply to Jools7770]

If you have bronchiectasis you really need a bronch specialist whom you can keep in contact with. GPs know nothing about bronch. If you have a bronch specialist- not a general respiratory consultant, they know little about bronch either, call their sec. If not, find one in your area and insist on a referral. At present your treatment is not effective. I'm afraid that we have to be very assertive in our own interests and vociferous in sourcing the right treatment and management. Whilst you are watching the tennis keep getting up, going to the loo, breathing and huffing and get as much of the rubbish out as possible.

[cofdrop-UK in reply to Hidden]

Prof Loebinger is a broch speicialist and is involved in ERS.

Cx

[Hidden in reply to cofdrop-UK]

Yes my con does stuff with him. I really don't understand why this situation has come to this with him as a con.

[Jools7770 in reply to cofdrop-UK]

I have collected sputum today and will get it tested!

[zube-UK in reply to Jools7770]

Sputum should not be kept overnight, it is only 'live' for a few hours, Most doctors do not know this but the lab technician will tell you, also saliva will degrade the sample, it's not an easy task is it, that's bronch for us ! Jools I hope you get some results and help soon.

[Whitechinchilla in reply to zube-UK]

Thanks for that tip. I had no idea.

[Hidden in reply to Jools7770]

I have always found these lab tests very unreliable. I think your idea of asking advice from your con through his secretary is the best. I hopeyou get it sorted.x

[Elizabethk]

Ask for blood tests to find out if you have lowered or lack of immunity. I was found to have no immunity to H. Influenza and was given a vaccine- waiting to find out whether effective or not. Take care E x

[6hortensia]

I wash hands with hibie scub all the time try this

[Tinker26]

After 18 months of showing moraxella catarrhalis and h influenzae In my sputum and lots of chest infections,I have just finished 625 mg of amoxiclav 3 times a day after seeing consultant and insisting for some helpVia the hospitals secretary. I have just sent in sputum sample but my god do I feel better ,hope it comes back clear,good luck with your ongoing health care x

[syntax]

I see you have had 20 replies,cannot read all of those,so will tell you

that l had same.in and out of hosp.overdosed on pred.The was put on

Aoxi two day,and have been on them years now.Best of this,have been

in Hosp. twice in those years. And l know there are better antibiotics

Doxy for one. But those are saved SHOULD l get infection ???

[Fiona121]

You will

Keep getting infection

[Oshgosh]

Get a sputum pot from GP,THENask if they can send it for culture to see what will work better for you. Take care

[Jools7770]

Thank you - I keep doing this! Waiting at the drs now with my little pot of green gunge 🤣🤣🤣

Does anyone see Dr Anita Sullivan in Birmingham please? Might see if I can get referred to her?

[Hidden in reply to Jools7770]

Yes. She has been my consultant for years. A very bright, experienced and caring lady.

[Jools7770 in reply to Hidden]

How often do you see her please?

[Hidden in reply to Jools7770]

As often as she and I decide that I need to. For most patients it is every 6 months or if a situation arises a call to her secretary can usually get you in.

[robert1957]

Hello

I would say you are dealing with a virus along with your bacterial infection

[santisuk]

Regular infections with bronchiectasis (more than 3 times per year)? British guidelines recommend that your doctor should be considering long term antibiotics - ie taken regularly throughout the year rather than just in response to yet another infection. Many of us bronchX sufferers benefit greatly from taking eg azithromycin 3 times a week. Has your professor broached the prophylactic option with you?

[If this has been going on for some time and your doctor does not have an explanation for not giving long term antibis it says something about his/her knowledge and thereby the quality of your care - try to get to a bronch X specialist in that event (or anyway!)]

here's the relevant extracts from "British Thoracic Society: Guidelines for Bronchiectasis in Adults" (January 2019)

"Evidence statements

Long term antibiotics reduce exacerbations in bronchiectasis.

(1++) .....

Recommendations

➢➢ Consider long term antibiotics in patients with bronchiectasis

who experience three or more exacerbations per year. (A)

➢➢ In these patients, the following are recommended (see figure 2

and appendix 2 and 3)

P. aeruginosa colonised patients

a. Use inhaled colistin for patients with bronchiectasis and

chronic P. aeruginosa infection. (B)

b. Consider inhaled gentamicin as a second line alternative

to colistin for patients with bronchiectasis and chronic P.

aeruginosa infection. (B)

c. Consider azithromycin or erythromycin as an alternative

(eg, if a patient does not tolerate inhaled antibiotics) to

an inhaled antibiotic for patients with bronchiectasis and

chronic P. aeruginosa infection. (B)

d. Consider azithromycin or erythromycin as an additive

treatment to an inhaled antibiotic for patients with bronchiectasis

and chronic P. aeruginosa infection who have a

high exacerbation frequency. (D)

Non- P. aeruginosa colonised patients

e. Use azithromycin or erythromycin for patient with bronchiectasis.

(A)

f. Consider inhaled gentamicin as a second line alternative

to azithromycin or erythromycin. (B)

g. Consider doxycycline as an alternative in patients intolerant

of macrolides or in whom they are ineffective. (C)"

[Jools7770 in reply to santisuk]

Thank you