To be or not to be..

A fan!! Aria knows what to do in hot weather conditions!! 😉

Best wishes my BLF friends xx

Fran

[skischool]

Has she eaten Bea?you go away for a while and lose a daughter,bit careless my happy friend xx

[Hidden in reply to skischool]

😂 she has taken over for sure!! Xx

[Yatzy]

What a wise cat! 😺 The football is attracting us all ⚽️ Six one is irresistible!! Speak very soon ❤️💕❤️ Just helping my mother with her hairdresser! Love 🌸 Penny xx

[Hidden in reply to Yatzy]

You are a good daughter Penny 🧚‍♀️

Love 💕 Fran xx

[sassy59]

Lovely Aria. Hope you are doing well Fran and enjoying the football. Things are hotting up here.............. weather wise at least!

Take care. Love and hugs xxxx 😘💖🌺🌼🌻

[Hidden in reply to sassy59]

Hello Carole,

Thank you 😊 🌸🌞

I have an exacerbation, started the rescue antibiotics and respiratory physio today, I don’t cope well in all this air conditioning. Anyway I struggled last week and thought take the tablets girl it is not going away, I phoned in the GP this morning, I am to increase pred to 20mg a day for 7 days as well.

So Im watching football like Aria today! Left Mum fending for herself poor thing. She has been down so Im staying on wondering if I will get a direct train back.

Wishing you and your husband well xx

Fran

[sassy59 in reply to Hidden]

Bless you Fran. Thinking of you and hoping things improve soon. You are doing all the right things. Wishing your mum well too.

Take care xxxx🌻🌺🌼🌹🌷💐

[Hidden in reply to sassy59]

Thank you Carole xxxx 🐾🧚‍♀️🌸🍀🤞💕

[helenlw7 in reply to Hidden]

I’m off to my gps soon - I too have a chest infection and need his advice. Do I start my rescue pack - amoxicillin andcsteroids, or do I go back on my prophylactic antibiotic, azithromycin, which lung dr told me stop four weeks ago because ‘people don’t get chest infections in the summer!’

[Hidden in reply to helenlw7]

Hi Helen 😊

Maybe he doesn’t get infections in summer..😃 what a silly remark..less viruses I suppose well different ones not triggered by cold weather but we have allergies, sudden changes in temperature..

Yes get to your GP soon and/or phone the BLF helpline..I suppose you will have to treat your infection first with rescue meds then get back to your azithromycin.

Now the local consultant wanted me to get on those but the LAM consultant said not necessary, still Im getting more chest infections lately, I wonder if I give it a try this autumn. Im already on daily steroids, are you? I can’t remember..it is just a lot of meds for my digestive system..

How do you get on with the azithromycin? I hate the clarithromycin of the same family.

I have two boxes of azithromycin in my travel bag, 3 sachets of 500mg a day per box so 6 days worth..I am supposed to take them if the first lot of Pyostacin doesn’t work.

All this medicine self-management is a headache..

Hope you feel better soon xx

Fran

[helenlw7 in reply to Hidden]

The hardest thing I find is deciding whether or not I need to start my rescu pack, also I’m not feeling good at the moment because my biologic RA being changed for a cheaper biosimilar! I saw my gp. I get on very well with him and his first words were ‘you look awful!’ So he took my temperature- 39.2, my sats - 97% and my blood pressure which was normal for me. He saw that I was breathing quite quickly and my heart rate was fast. He sounded my chest, said yes I had an infection. He put all the data in his computer and said ‘you know what I’m going to say now, don’t you.’ I knew he was going to say a and e because I’ve been in the same position a few times before. He told me to look at his screen and it said red alert sepsis which was very scary. Anyway he decided that as my sats and blood pressure were ok, and he knew I was sensible and would take myself there if I got worse - we only live about a mile away. So I’ve started my rescue pack antibiotics and steroids and I have to see him on Thursday morning. If I’d started them on Saturday when I felt a bit rough but hadn’t started coughing I might have saved all this!

I have an appointment with the lung man in two weeks and I will be discussing this antibiotic holiday! I’m fine on the Azithromycin and I’m on 7.5mg of steroids a day, the lowest dose I’ve managed to get down to. I’ll be hyper for the next week on 30mg a day!

[Hidden in reply to helenlw7]

Wow that temperature was very high Helen!!! How brave you are!! Please keep a thermometer at home from now on! Glad you have a caring GP. It makes all the difference 😊

I have the same problem with self-management, I should have started them on Friday. If it wasn’t for the physio saying Fran this sputum means you have a chest infection.. I always feel sort of guilty..as well as hopeful that I can get rid of it without, well I don’t anymore.

I’m on 30mg pred for 3 days and supposed to get down to 20mg and so on. I have been on higher pred non stop since the eye ops, it is going to take me ages to get back to my 7.5mg.

Good to know about the azithromycin. Is it 250mg 3x a week? If I may bother you again. Don’t answer tonight just rest and drink plenty of fluids!!!

I met a nice young lady doctor in the lift this evening at Mum’s care home, we chatted and she gave me her details. She said to come and see her if I need to. I may well take her up on it if I get anymore rashes with this antibiotic.

Let us know how you are getting on won’t you?

Wishing you much better xx

Fran

[helenlw7 in reply to Hidden]

We do have two thermometers, and one needed a new battery, and the other was reading 36 degrees so I thought it was ok. My temperature always reads below normal but my eyeballs feel as if they are burning if I have a temperature but they felt ok this morning! I’ve just ordered a new one from Amazon!

I also think I can get rid of things without more medication. I have 22 different medications on my repeat list, plus one that I inject. I’ll never learn!

I am on 250mg Azithromycin three times a week.

I’m sure I’ll feel better once the antibiotics and steroids have kicked in. Mind you I can’t start the steroids until tomorrow morning otherwise I’ll be dancing the night away! I am drinking plenty - I always do in this weather.

[Hidden in reply to helenlw7]

Thank you for taking the time to answer. 🌷

Yes get a good one, the ear one is supposed to be the best but I have a simple digital one I put under my tongue.

Sounds like you need a med review..

Just antibiotics keep me awake I don’t know why they have always done..Im taking herbal tea and bromazepam at night these days I need my beauty sleep!

Have a good restful night Helen 💤🧚‍♀️💐

Fran xx

[mellyme]

Beautiful!!! Wise Meow.

[Hidden in reply to mellyme]

Thanks!! So wise 😃

[Hidden]

Hello Fran, So sorry your not well pleased you have the medication take good care. Hoping you feel a lot better soon. It seem Aria likes to watch the football. Majt X 🌺

[Hidden in reply to Hidden]

Thank you Majt xx 🌸

[Caspiana]

Hello Fran.

Long time no see. 😊 Aria looks to be enjoying the game. 🐱 She's lovely. I hope you are doing well. xx ⚽

[Hidden in reply to Caspiana]

Thank you Cas..not too good but fighting it I suppose..🌞🧚‍♀️💐

[megshafer]

Aria loves her sports!!!

She's very interested in this game!

Get better soon!!! And, take good care of yourself!!

Megxx

[Hidden in reply to megshafer]

Thank you Meg!! Yes got her well trained 😃

Xx 🤞🌼

[Hacienda]

Hi Fran, Sorry your not too good. Aria has the right Idea, I don't watch all the Matches, but enjoyed the vital ones so far. 6.1 wow. Here, it is too hot (yes UK) to be out in my garden and I love the Sun. Take care Fran, Hope you & your Mum are feeling Better Today. Love n Hugs. Carolina . Besitos. xxxxx

[Hidden in reply to Hacienda]

Hola Carolina, Que tal? Todo bien despues la operacion? 🌷

Yes trying.. thank goodness for the rescue meds.. 😉🍀🤞💕

Fran xx

[Hacienda]

Muy Buenas Dias Carino, Soy Bien. maybe because of the Temperature here, I have been a little sob than after my op. I probably try to do too much, forget I'm no longer as young and having this Dam Disease. We plod on though as we must. I go to see my Consultant on 11th July for X Ray & Lung Function. I look forward to my daughter coming over in August to Join in the Festivities of my Hubby's 50th Birthday Party and to Celebrate our 2nd Great Grandchild , which we were told of last week, Me & Hubby have 5 Grandchildren & almost 2 Great Grandchildren , of Course I'm 17 years older, I don't feel it, (I lie, sometimes I feel 100) Ha Ha. Bien, me voy en el Ducha, con agua frio , pienso, Abrazos y Besitos a Ti y Bea Y tu madre, y Aria XXXXXX

[Hidden in reply to Hacienda]

So glad you are better Carolina. Hope you have a great time with your family. Que le pasa bien querida. Gracias para sus palabras cariñosas xxxx