Hot!!: Now remind me why was I moaning... - Lung Conditions C...

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Hot!!

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Now remind me why was I moaning about cold and rain? πŸ˜ƒ

I should be enjoying being dazed by this bright sunshine β˜€οΈ wearing double glasses 😎 to protect my new blue luminous eyes, carrying my shopping πŸ›’ with my fractured back vertebrae since I did that Ronaldo’s backflip in my dreams..

Good news lungs are clear 😊

So tests and more tests, meds and more meds I am thinking : My life is a sitcom! πŸ“Ί

That’s how I like to picture it so I can have a laugh at myself and the world and I can unwindπŸŒ¬πŸ§˜β€β™€οΈ

Hope you are keeping well BLF friends, enjoying the heatwave, going to the garden centre, having a fresh cool drink and dreaming of summer days to come.

Love,

Fran xx

43 Replies
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Yatzy profile image
Yatzy

Good to have our optimistic Fran back πŸ’™β˜€οΈπŸ¦‹πŸ’› We’ve been quiet without you.

Heat wave? Yesterday certainly felt like it after the cold times we’ve had. Welcome to our lovely sun β˜€οΈπŸ’›β˜€οΈπŸ’›β˜€οΈ So glad your lungs are now clear, Fran. Onward and upwards πŸ§—πŸ»β€β™€οΈπŸ§—πŸ»β€β™€οΈπŸŽ–

Have a good day, all. 🌺🌸🌿 Penny x

in reply to Yatzy

Thank you Penny xx πŸŒΌβ˜€οΈπŸ’•

2greys profile image
2greys

I will be at work making final preparations before some time off starting next week, luckily the air will be coming off the sea so I will be a couple of degrees cooler. Some will be getting 28Β°C today (82Β°F in old money) phew!

in reply to 2greys

Yes nothing like the sea air, lovely! I’d enjoy that too.

I expected you would be getting things ready as we do before d day. Read yesterday that Merck is getting new immunotherapy out. In the Financial Times: Merck immunotherapy trial boosts hopes for lung cancer survival rates.

Well it seems they are competing with Bristol-Myers for a share of the market so come research and trials..1.8M patients worldwide.

Here I’m trapped between mountains in the valley, the lake is flat and shiny as an ice rink at 8 am but the view is stunning.

I didn’t make it to our FLAM ( French LAM) annual general meeting in Tours two weeks ago as I was unwell but it seems I got elected as a regional delegate for the β€œGrand Est”. Well it was the best news I have had in a while. A wide region indeed but there are so few LAM patients. So I will be on the road soon contacting those isolated ladies on my list trying to organise a get together and see how the association can support them.

Thinking of you x

Fran

Yatzy profile image
Yatzy in reply to

Congratulations, Fran πŸ…I know you’ll do a good job. Lucky Grand Est region. You’ll be in a good position to learn more about LAM yourself if any developments in understanding of your condition, too. Very well done, my friend πŸ’•. Good luck with the bone scan, hope the news is relatively good🀞🌸🀞xx

in reply to Yatzy

Thank you Penny πŸ˜ƒπŸŒ·

So much to be done, nobody took up that region although Lyons is the centre and has the best consulting team in the country, so as I attend that hospital I hope we can have a good cooperation for new patients etc..

Yes as long as it is the only fracture I’ll cope πŸ˜ƒ

I’ll just go to my appointment at 12 and see.

Good day xx

Fran

Hacienda profile image
Hacienda

Querida Fran, So Glad your feeling Better and Wow, your Lungs are Clear, that is great news, OH How I would love to say that. But only a Miracle will allow it for me. The Weather here has changed for the Good, Hot Sun Yesterday, Our Council Gardeners Mowed the Lawn instead of Hubby, they did a great job, the smell of fresh grass cuttings I came over with Nostalgia to my childhood.. Read the Papers in the garden under a Parasol, just Needed la Playa, and my mind would be in Spain....Love n Hugs. Abrazo y Besos. XXX

in reply to Hacienda

Hola Carolina!! Que tal? β˜€οΈπŸŒΈ

I meant clear from infection but as for the cysts it is a different matter..

I hope you are not presently suffering too much. I am glad you can enjoy the garden 😎, close your eyes and dream of la playa πŸ– con tapas y una cerveza fresquita!!

Lots of love πŸ’•

Fran xx

Hacienda profile image
Hacienda in reply to

Estoy Muy Bien Fran, Gracias, Si en me Suenos ...Cerveza Frio y Tapas Mucho. Yo hacen comida Espanole en me Cocina mucho veces, Tortillas Espanole cada Semana, y Paella Mixta, Patatas Bravas Etc......When I was a fit woman and capable I would be in my Kitchen always cooking Spanish Dishes...A Delight for my English In Laws here, many a Spanish night was had. Hubby was a Chef in our own Restaurante. He does most of the Cooking now, The Joys of having a young Hubby. XXXX Love n Hugs Abrazo y Besos xxxx

in reply to Hacienda

Wow Carolina those were good times I bet 😊

I remember when I lived in Castelldefels and worked in El Prat de Llobregat I used to love my evenings and my weekends although I worked hard and slept little πŸ˜ƒ

I used to walk to el paseo maritimo have some pulpo gallego or gambas al ajillo y pan con tomate and looked at the sea.

I miss those days too. You can’t have it all. I’ve loved working in London and life buzzing around me and now I’m watching the Alps with snow on the peaks and I think I am so grateful despite life’s ups and downs that I have been teaching all those years in lovely places. I’m so happy to see Bea speaking 4 languages, and thinking the world is her oyster.

We don’t need much Querida, a lot of hope, a little sunshine and healing, and the rest is not in our hands.

Lots of love πŸ’•

Fran xx

chubby2x22 profile image
chubby2x22

Lovely picture. My daughter did her pattersier training in Zurich this reminds me of it. Lovely sunshine on the east coast but as the sea is only half a mile away the wind is really cool. Sheltered spot will make for a good day. Enjoy.

in reply to chubby2x22

Hello chubby,

Ah interesting. Hope she enjoyed her time there.

Sounds lovely on the east coast!!

Hope you find that spot!!

Have a lovely day x

Fran

sassy59 profile image
sassy59

Wishing you some wonderful days ahead dear Fran. Lots of nice sunshine and better health. Stay positive.

Lots of love Carole xxxxx

in reply to sassy59

Thank you dear Carole xxx

Lots of love too 🌼

Wow Fran that is hot and must say your eyes sound very funky with the blue luminous or is that an added extra xxxwhen you say your lungs are clear do u mean no infection and if yes has your scan showed any changes compared to a past scan with regards lam ☺..I was beginning to wonder if u were ok as I posted the other day and you never replied so knew u where otherwise engaged xxx hope your well my friend πŸ’™πŸ’šπŸ’›πŸ’œ

in reply to

My dear Mel

Yes I have regained a look I didn’t know I had πŸ˜ƒπŸ˜ƒ I haven’t been able to see my eyes since the age of 7 except through glasses!!

Yes clear of that lousy infection after 15 days antibiotics and steroids, the usual but maybe because it was after the ops it affected me more who knows. Talking about fatigue..Bea got worried so I pulled myself together.

Otherwise engaged going to medical appointments πŸ˜ƒ still managed to look at shops on the way so I must be getting betterπŸ˜‰

And how are you my LAM sis??

Lots of love πŸ’–

Fran xx

skischool profile image
skischool

Sizzling 27 deg outside the L'Enoteka bar and restaurant my happy friend,did you pop in for a refreshing beverage or is crossing the road to dangerous with your white stick in Rolle.?

Good news about your infection free results and also Psg's 3-1 win last night,soon you will be to busy on your delegate travels to watch football so your potential audience will have to accept out of footie season support and guidance,hopefully you will find your new post rewarding and your determination to help other Lam sufferers is to be applauded......

love Ski's and Scruffs basking in rare sunshine oop north. xx

in reply to skischool

πŸ˜ƒπŸ˜ƒThanks for the white stick 🎿 and 🐾

Yes it was a good match although the video assistance tried to spoil it for me πŸ™„ we made it before extra time!!😊

Well it’s not going to be a full-time job, I couldn’t cope with that anymore.

Just volunteering you know in my own time, although we have a monthly meeting in Paris at the rare disease alliance, the rest will be help and support for now then we will see where it leads, I have 10 patients who have agreed to meet with me so far but all over the eastern part of France, some in places I have never heard of! I thought that was puzzling, genetics works in strange ways, still it will be a voyage of discovery 😊

Glad you are enjoying the good weather. Noted Burnley-Chelsea for this evening hope I manage to stay awake!! πŸ˜ƒ

Talk to you then x

Fran

breatheeasy1 profile image
breatheeasy1

Hello Fran wow it's hot where you are! It makes a lovely but extreme change to the weather of late..and I get you look like a superheroe with those Ice Blue eyes and double sunniesπŸ˜†πŸ˜Ž.

Good to hear you had good results from recent tests...and congratulations on your regional delegate position! Very well done.

I am like 2greys...preparing for future treatments so have collected mountains of shopping and am clearing housework ready for the final poisoning tomorrow...here's hoping it's the last πŸ™.

As you said...our lives are a sitcom..so let's keep watching and laugh at the funny bitsπŸ˜‰

Lots of love πŸ’žβ€

in reply to breatheeasy1

Thank you my dear Anne πŸŒ·πŸ’–

So glad you are having your last dose tomorrow😘

What a journey you have accomplished, how brave you have been through it all, taking care of your family at the same time, you are an example to us all Anne 🌹

I wish you the easiest poisoning of the lot and the best ever recoveryπŸ§šβ€β™€οΈ

Yes then we’ll start writing that new script and make wonders!!!

Love,

Fran xx

breatheeasy1 profile image
breatheeasy1 in reply to

Thanks Fran, no guarantees its the last just yet but here's hoping...πŸ˜‰ We have to stay positive don't we?

Enjoy that sun...I'm watching my little ones playing with water in the gardenπŸ˜‚πŸ’¦ How long before someone gets soaked?! Hope it's not me!!πŸ˜‚ xxx

in reply to breatheeasy1

We do dear Anne!! πŸ’•

πŸ˜‚ water games lovely πŸ˜‚πŸ˜‚

🀞😘🀞😘

Fran xx

Dubba61 profile image
Dubba61

Hi i bet the AlpsπŸ”οΈπŸš  n lake are looking fab! Glad things are a little better for you. Everyone around here looks so much happier now the Sun is shining. β˜€οΈI've done my Thursday Swim,🏊 n am going to sit on the Sandunes πŸ–οΈβ³ n watch the Waves 🌊for a while. Have a great day. 😊🌻🌹✌️

in reply to Dubba61

Hi Dubba

How lovely!! 🌸 You got me daydreaming of sun and sea, well the grass is always greener on the other side..πŸ˜‰

I have to start googling last minute holiday breaks again I think!!

Been watching A place in the sun for too long now πŸ˜ƒ

Thank you for your kind happy message.

Fran xx β˜€οΈβ˜ΊοΈ

Dubba61 profile image
Dubba61 in reply to

Ooh i kno

Dubba61 profile image
Dubba61 in reply to Dubba61

I was going to say. Ooh i love that show! Get so envious though n want a house everywhere. Hope your day went well. As mine did. I even have a bit of a tan colour! 😊🌻🌻 unusual for me as i normally have that Northern skin colour. Milk white. 😊

Gino39 profile image
Gino39

Hi Fran, yes we had almost forgotten what sunshine was like! A sitcom hey? Yes as someone once said, all of life is but a stage and we are mearly actors upon it!😊 A little garden catch up for me too today😊 Enjoy...

Gino x

in reply to Gino39

Hi Gino 😊

Sounds about right πŸ˜ƒ

Hope you’re enjoying the garden,

Have a lovely evening!!

Fran xx

Kitten-kat23 profile image
Kitten-kat23

Take care and enjoy the weather. Hugs.

in reply to Kitten-kat23

Thank you Kitten! Hugs back xx

Hacienda profile image
Hacienda

Ha Ha Fran, Love the "Sit Com" we have become...maybe one day in years to come we will all receive a " Bafta" !! But, this is Real isn't it. have a Woderful Weekend, After my Rehab today I shall be sitting in my Garden in the Glorious Sunshine....con un Vaso de Vino..hasta Luego Carino. XXXXX

in reply to Hacienda

Una copita de vino tinto! Que suerte!!

Yes it is a welcome time off after rehab I am sure! Once the eye specialist gives the ok, hopefully on Wednesday I will start again.

Enjoy the weather!!

Take good care of yourself xx

Un abrazo

Fran xx

helenlw7 profile image
helenlw7

Glad to see you and your photos are back. I’ve missed them. It’s good news about your lungs. I’m loving the sunny weather - I even did a bit of gardening yesterday, bit being the operative word. I have back problems so can only do a little at a time, but it’s looking better already.

in reply to helenlw7

Hello Helen,

Thank you for your kind words.πŸ’•

This weather is gentle to our backs and bones. I have to get a little stool for my chores now because I tend to reach for things without thinking and feel it straight away πŸ˜ƒ

Garden is blooming I’m keeping my fingers crossed as I am watching the weather map!!’

Have a nice weekend xx

Fran

helenlw7 profile image
helenlw7 in reply to

It’s a lovely sunny morning here. I’m off to have something done with my hair soon and then later this morning we’re off to the Cotswolds- our eldest son is getting married. I bought my β€˜outfit’ before we thought the weather was going to be cold, so I’m now thinking I need to have a rethink! Have a good weekend.

in reply to helenlw7

How lovely! Wishing your son a great wedding day! Several layers maybe? 😊🌸

joyce74 profile image
joyce74

Good news Fran, glad you are able to get some sunshine, it's so good for our moods. We spent a day in Fleetwood on Wednesday, it was so relaxing. 😊

in reply to joyce74

Thank you Joyce 🌸 Glad you enjoyed your day out. My cousin arrived yesterday. Last time she came was for Dad’s funeral in December so a different trip altogether..a very supportive lady.

She was amazed at the sun, flowers, and people walking bare legs in the High Street!!

Campers are back on the lakeside and apprentice footballers are kicking the ball at the park.

So we ate in a little Italian place and had a good catchup.

Have a bright Saturday xx

Fran

joyce74 profile image
joyce74 in reply to

Glad you had a nice day with your cousin and bet you spent some time talking of happy times with your dad. The weather is still ok here at the moment so I hope to get out with one of my daughters and my 10year old granddaughter today. Got a blue badge yesterday so will make it easier Parking and getting in out of it with my frame and oxygen. Hope you are still improving every day.🌼🌸πŸ₯

in reply to joyce74

A blue badge will be very useful yes. Wishing you a happy day with your daughter and granddaughter 😊🌷

joyce74 profile image
joyce74 in reply to

Thank you 😊

Shirleyj profile image
Shirleyj

Hi fran, glad your chest is clear, shame about the other things. Enjoy the sun 😎😎😎x

in reply to Shirleyj

Hi Shirley

Thank you 😊 Yes sunshine helps to lift our moods..the other things I am dealing with one day at a time..Started the Crestor 5mg statins yesterday, no reaction whatsoever so that was a mark on my score board!! πŸ˜ƒ it is for 3 months then I will take a higher dosage.

Have a lovely Saturday x

Fran

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