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Esbriet
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The best of three evils: Which medication will cause me least grief?
At the moment
Esbriet
seems to be the least of the evils, but I wondered if anyone else has any useful insights on these drugs. I would expect a fair few members are on mycophenolate, but what about the other two drugs?
At the moment
Esbriet
seems to be the least of the evils, but I wondered if anyone else has any useful insights on these drugs. I would expect a fair few members are on mycophenolate, but what about the other two drugs?
Sclero_99
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Anti-fibrotic drugs and Orgovyx combination
Does anyone have Idiopathic Pulmonary Fibrosis and taking anti-fibrotic drugs such as Ofev or
Esbriet
AND also have PCa and taking Orgovyx? I would like to know firsthand experience of such combination of drugs. Thanks in Advance
Does anyone have Idiopathic Pulmonary Fibrosis and taking anti-fibrotic drugs such as Ofev or
Esbriet
AND also have PCa and taking Orgovyx? I would like to know firsthand experience of such combination of drugs. Thanks in Advance
nicecity
in
Advanced Prostate Cancer
2 years ago
Strange Referral, worried about delays on lung test....
He is taking
Esbriet
presc by The Brompton. I am now concerned he will have to wait even longer for an appt for his test, his breathing is worse and the pumps don't seem to make a huge difference....I am concerned he will get lost in paperwork and his test severely delayed...any advise?
He is taking
Esbriet
presc by The Brompton. I am now concerned he will have to wait even longer for an appt for his test, his breathing is worse and the pumps don't seem to make a huge difference....I am concerned he will get lost in paperwork and his test severely delayed...any advise?
lookingafterdad
in
Lung Conditions Community Forum
4 years ago
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Esbriet
hi been on
esbriet
6 months..tbh not sure if its doing any good...has anyone been on them and came off and felt better for doing so? seeing lung dr in week and pondering whether i should go for quality and not quantity
hi been on
esbriet
6 months..tbh not sure if its doing any good...has anyone been on them and came off and felt better for doing so? seeing lung dr in week and pondering whether i should go for quality and not quantity
fluffy1964
in
Lung Conditions Community Forum
5 years ago
Esbriet Rash
Hi I’ve been on
Esbriet
for 6 weeks and one silly mistake putting the wrong factor sun cream on (used 15 instead of 50) resulted in me getting the dreaded rash. I’ve been told to stop taking my meds for two weeks and it will clear up.
Hi I’ve been on
Esbriet
for 6 weeks and one silly mistake putting the wrong factor sun cream on (used 15 instead of 50) resulted in me getting the dreaded rash. I’ve been told to stop taking my meds for two weeks and it will clear up.
Bob207
in
Lung Conditions Community Forum
6 years ago
ESBRIET/PIRFENIDONE
Hi everyone, i am currently taking
esbriet
, i got up to max dose of 3 tablets 3x a day but couldn`t cope with them and papworth took me back down to 2 tablets 3x a day, i am having some issues with these tablets which i expect but the reason why i am writing this is because i`m feeling very deppresed
Hi everyone, i am currently taking
esbriet
, i got up to max dose of 3 tablets 3x a day but couldn`t cope with them and papworth took me back down to 2 tablets 3x a day, i am having some issues with these tablets which i expect but the reason why i am writing this is because i`m feeling very deppresed
kimmi9
in
Lung Conditions Community Forum
6 years ago
Dad having severe SOB after 1 Alimta maintenance infusion
He is in a clinical trial with chemo and Pirfenidone (
Esbriet
) 9 pills per day. He has had 4 Carbo/alimta infusions with small shrinkage but mostly stable disease.
He is in a clinical trial with chemo and Pirfenidone (
Esbriet
) 9 pills per day. He has had 4 Carbo/alimta infusions with small shrinkage but mostly stable disease.
Lisam81
in
Lung Cancer Support
6 years ago
IPF which drug do you take
My choices are Nintedanib or
Esbriet
(pirfenidone) The side effects of both are not special, just wondered if you good people out there have any experience on either. Theses drugs were recommended by the Brompton Hospital, look forward to you answers.
My choices are Nintedanib or
Esbriet
(pirfenidone) The side effects of both are not special, just wondered if you good people out there have any experience on either. Theses drugs were recommended by the Brompton Hospital, look forward to you answers.
robinc10
in
Lung Conditions Community Forum
6 years ago
Questions
Hello my husband was diagnosed with uip in July 2017 and at that time had a 36% lung capacity and on 3 liter of oxygen.He was put on
esbriet
and has been doing great without any side effect.He hasn't worked since march of 17 we wish we New what this life has in store for us at this point all we no is
Hello my husband was diagnosed with uip in July 2017 and at that time had a 36% lung capacity and on 3 liter of oxygen.He was put on
esbriet
and has been doing great without any side effect.He hasn't worked since march of 17 we wish we New what this life has in store for us at this point all we no is
kkfrank
in
Lung Conditions Community Forum
6 years ago
Ipf or pulmonary fibrosis?
Not able to take
esbriet
because my breathing was 91 and nice does not allow this drug to be prescribed to people who has over 80 per cent. My question is what happens to all people with ipf who cannot be given this slowing down drug?
Not able to take
esbriet
because my breathing was 91 and nice does not allow this drug to be prescribed to people who has over 80 per cent. My question is what happens to all people with ipf who cannot be given this slowing down drug?
winfar
in
Lung Conditions Community Forum
7 years ago
Esbriet (pirfenidone)
Esbriet
or Pirfenidone I began taking this medication mid November and quit December 31. The side effects were just to much, headaches, body aches, and greatly increased fatigue. I'm feeling I'm on the down swing health wise hoping I level off and find a new groove.
Esbriet
or Pirfenidone I began taking this medication mid November and quit December 31. The side effects were just to much, headaches, body aches, and greatly increased fatigue. I'm feeling I'm on the down swing health wise hoping I level off and find a new groove.
docmel
in
Lung Conditions Community Forum
7 years ago
Esbriet
Are there any people out there who are taking
Esbriet
for Pfi?
Are there any people out there who are taking
Esbriet
for Pfi?
Lizzy1898
in
Lung Conditions Community Forum
8 years ago
IPF
I take
Esbriet
has anyone ever heard of taking hemp oil for IPF? and does anyone know how well
esbriet
works. I've been on it for 6mths. Seems to help with cough. On oxygen 24/7
I take
Esbriet
has anyone ever heard of taking hemp oil for IPF? and does anyone know how well
esbriet
works. I've been on it for 6mths. Seems to help with cough. On oxygen 24/7
lmcfee
in
Lung Conditions Community Forum
9 years ago
Anyone using ESBRIET for I.P.F. or COPD ?
Anyone using
ESBRIET
for I.P.F. or COPD ?
Anyone using
ESBRIET
for I.P.F. or COPD ?
helpmysister
in
Hughes Syndrome APS Forum
11 years ago
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