Lung function test results: Am i... - Lung Conditions C...

Lung Conditions Community Forum

55,609 members66,308 posts

Lung function test results

Chellsangels profile image
14 Replies

Am i entitled to no my FEV AND FVC %. My surgery are refusing to give me them

Written by
Chellsangels profile image
Chellsangels
To view profiles and participate in discussions please or .
Read more about...
14 Replies
stone-UK profile image
stone-UK

Hi

As much as you are entitled to your results, for a hard copy there may be a charge.

They should give you a overview ie your FEV1 verbally.

Recently had mine done I was given a verbal indication.

When I previously asked for my results to add to my DLA claim. I was told the information will be sent to DWP on request free of charge. For me there would a charge. ( the nurse wrote down two numbers for me, which with help from internet I was able to compile a satisfactory response for my claim)

Katinka46 profile image
Katinka46 in reply to stone-UK

Thanks, Stone. Our replies came at the same time...

Katinka46 profile image
Katinka46 in reply to Katinka46

P.S. I have never been charged for mine.

Chellsangels profile image
Chellsangels in reply to stone-UK

They just say they are normal but been diagnosed wiv emphysema and fibrosis x

Katinka46 profile image
Katinka46

Seems odd to me. I always get given the print-off at the time they are done, and this is at the GPs, at St James’s in Leeds, and at the Royal Brompton. Presumably you have been told the results as part of a consultation with your GP? What explanation have you been given for the refusal? Hmmmm.... Tricky. Ask the practice manager?

What the legality is, I don’t know. Generally we are entitled to all notes, letters, test results, but doctors retain the right to withhold information if they think it could harm the patient.

stone-UK is the one who often knows these things, and there are others here who understand these things.

All the best

O2Trees profile image
O2Trees

Yes, I always get a print-off too - never any question about a fee.

And yes again, Im sure you are entitled to know your results. As far as I know that's been the case in the UK for some time now. Your GP should receive a letter or notice of your results, maybe a summary, and any correspondence to your GP by consultants, you should automatically be copied into.

Im just going to check this on google and will correct if Im wrong ... Ok here I am again, not much the wiser. Seems there is room for discretion by different surgeries. Ive never had any problem accessing test results, and I have been given my notes to go through at the back of the waiting room.

Im wondering what the issue would be in refusing to give them to you. Do they think you won't be able to handle knowing, or do they feel it's too difficult to go through what they mean with you? Beats me. I would always want to know, even if the results were bad.

Remember that phrase about patient choice which was circulating after the 2012 Health and Social Care Act - "Nothing about me without me". That seems relevant to this question.

stone-UK profile image
stone-UK in reply to O2Trees

Hi

nhs.uk/chq/Pages/2635.aspx

Chellsangels profile image
Chellsangels

The hospital did the test in october i have a diagnosis but they wont give me my %

stone-UK profile image
stone-UK in reply to Chellsangels

Hi

If the test where done at hospital, that’s where you should request a copy of your results from.

Chellsangels profile image
Chellsangels in reply to stone-UK

I have they told me to see my consultant but thats not till may x

gingermusic profile image
gingermusic

I had a COPD check just last week and the nurse printed off a copy of my results there and then for me without any charge, which was great as I was able to send them in with my PIP claim

Lazarus profile image
Lazarus

When I went to Charring Cross for my full spirometry tests, which were performed by a nurse, or technician, they were happy to let me see and have the figures, but they weren't allowed to discuss them with me because, of course, they weren't qualified. In your case, it may just be that the people you are asking can't give you the results - because they think it is something for the consultant to discuss with you properly once they have all the information or test results in front of them. But it certainly isn't right, very helpful, or polite for someone else to know your personal information and to withhold from you without giving you a good reason. IMHO.

DJstag profile image
DJstag

Hi, you are allowed access to your medical records under the data protection act. Also might be under the Access to medical records act???? (Not sure tho).

They are however able to charge upto £50 I believe (might have gone up). Lots of doctors have an online system where you can view your records for free!!!

I ask and get a copy of my spirometry results free tho.

Hope this helps 😀

Mike

When I wanted to see the records of a deceased relative, for the purposes of an upcoming inquest, I wrote to the Medical Records Officer, stating my request was in accordance with the Data Protection Act. I was able to view the records a week later and make notes from them. There was no charge, but they said if I wanted photocopies I could be charged up to £50. It would probably be quicker for you to write to the Practice Manager at your surgery, along the same lines.

I go to the Brompton & they give you a copy there & then, ditto my local hospital, and when I've requested copies of anything from my surgery I've never had a problem.

You may also like...

Lung Function Test & Covid

it as positive. I called the hospital to inform them & apologise but they said as I had cancelled...

Had to cancel my Lung function tests

was prescribed Carbocystine after my GP contacted them about the amount of stuff I was coughing up....

ILD review letter? After Lung Function Tests

Lung Function Test

Lung function test