NEBULISERS

[jacobcaleb]

looking for a fast nebuliser for my grandson age 7 to use as it takes him 90 min to do his physio he has CF

[hopetorun]

I dont understand why do you need a nebuliser. Sorry if i sound a bit harsh. But once you start using a nebuliser it is difficult to stop. I have ysed a nebuliser for nearly 20 years. I would sugest you try evergreen website they have a good selection in all price ranges.

I hope you find a solution to help your gandson. Best wishes i rene

[cofdrop-UK in reply to hopetorun]

A nebuliser would be essential in the treatment of cystic fibrosis hun, not only for bronchodilators but for hypertokic saline and maintenance antibiotics and they should not have to pay for it.

cx

[hopetorun in reply to cofdrop-UK]

Thank you

[TuckBox2]

Lidl do a really good nebuliser for only £19.99 but it is not s regular item. You have to catch it when it is on special offer. The following week they have a pocket sized nebuliser for £29.99, which makes no noise at all, it works like a vape machine.

I bought one of each about 5 years ago and they are still giving a good service.

The pocket neb is battery operated very useful when I am travelling, or camping with the scouts.

[Caspiana]

Hello jacobcaleb .

I don't use a nebulizer myself so I can't help you there, but I just wanted to say I'm sorry about your grandson's condition. It must be gut wrenching for you and your entire family. I sincerely hope you find what you need.

Take care.

Cas xx 💐

[Hidden]

What about the Philips Respironics I-neb? philips.co.uk/healthcare/pr... I’ve got one on loan and I think they’re readily available to cystics, exactly because of their increased burden of treatment. It’s super-fast & portable. His consultant should be able to arrange it

[ol-ly11 in reply to Hidden]

I have one of these. Really quick. Good luck

[cofdrop-UK]

Hi J

Sorry to hear your little Grandson has cystic fibrosis. Excellent suggestion from Hanne. Your gs should definitely be provided with and I-neb.

love cx

[Hidden in reply to cofdrop-UK]

I neb only works with one antibiotic though cof. I tried that rout but it won’t neb my ceftazidime. An absolute pain!

[cofdrop-UK in reply to Hidden]

I bet it is a pain lp. I can't tolerate ceph orally and so never had it nebulised, nor did I tolerate Colmtcin but if I did I would have pushed for an Ineb and Promixin.

Hope you get sometibing sorted soon for your little grandson. He is much more likely to comply with treatment the quicker and easier it is with such a heavy maintenance regime.

Good luck.

cx

[Hidden in reply to cofdrop-UK]

It’s not my grandson who has cf thankfully. Ceftazidime is not available orally. Only I V or neb but most docs don’t prescribe it. Were you thinking of cipro?

[cofdrop-UK in reply to Hidden]

Sorry my brain is foggy this morning. I didn't tolerate ceph by IV whilst in 5*. I don't tolerate Cipro either or most of the macrolides, which makes life difficult.

Second paragraph was meant for Jacob and I should have made that clear or not put it in your reply.

cx

[Hidden in reply to cofdrop-UK]

These posts do get confusing. It must be frightening and frustrating not to be able to tolerate nearly all of the abs. I know that you have other horrible gastro problems. I get a rash with anything oral or IV but take anti histamines. Just had 2 weeks cipro ( no rash this time) but don’t think it did much.

[ol-ly11 in reply to Hidden]

You can take salbutamol and saline with I neb as I do. I have a different colour chamber for saline

[Hidden]

I have a Phillips Respironics. It was arranged by my consultant. I just had to collect it. You should be able to get one for your grandson.

Best wishes 🌸

[sarcoid1234]

I agree with HappyLondon. Your consultant should arrange through the physiotherapy department at your hospital to supply you with a nebuliser and let you know what your grandson should be using with it. For my condition with my nebuliser, supplied by my specialist hospital, I use the content of capsules (therefore no preservative) that are given on prescription by my doctor as directed by the hospital. I think most people on this site have different lung conditions so the medications they use would not be suitable for cystic fibrosis. I expect your grandson goes to a hospital that specialises in cystic fibrosis. If not please type "cystic fibrosis specialist hospitals" into Google and ask to be referred to one near to where he lives.