My husband's CT scan showed there was a T3 shadow. He has had a PET scan ( last Tues)and bronchoscopy (last Thurs) and we are now awaiting the results. It is very frightening times. I know the MDT team meet on Wednesday but how long do you think it will be before we get an appointment.
Thanks for any advise
Jean My husband had pet scan 20th April was seen to give results 2nd May. That was followed two weeks later after MDT meeting to give him a treatment plan. He was unable to have chemo or surgery because of other on going problems. He had seven fractions of a highly intensive Radiotherapy given over a period of two weeks in June. Since then we have seen the Oncologist for a meet and greet meeting, a further CT scan two weeks ago. We were told that we would not get any results until one month after the CT scan at least. It may be different for you that is just how its been for us. Try not to worry to much you can not change anything at this stage. I do hope all goes well for you and husband xx
Hello clematis our cousin has lung cancer but had been treat for COPD for over six months before it was realised he had cancer, his lungs collapsed and they said they could not de Chemo, however they took him in hospital for two weeks of intensive radiography treatment, apparently 32 sessions in all. Oh I forgot also it had spread to his throat so after all this horrendous treatment he is in terrible pain, his throat is all burnt and he can not hardly eat a thing, a few mouthfuls if soup is the most he can manage, he told his wife that if this hadn't worked he will be refusing anything like this again, obviously he is very depressed and his wife is so worried she is having anxiety attacks. I don't know what to say to comfort them. I'm poorly myself too with infection and yet infection and I'm waiting for another CT scan, I really do t want to go beside him incase I carry anything to him, gave you any suggestions ? Appreciate anything at all. I do hope your husband recovers from his conditions and received excellent help. Thank you.
Oh I forgot to mention I have bronchiectasis both lungs and asthma. X
I would like to think if there was anything serious that they would get in touch with you immediately, you shouldn't have to wait long, but some hospitals are different to others. I have to go for another CT scan myself as there was a difference of opinion between two hospitals, so it's left me wondering what this is all about. The x Ray my specialist did the other day showed a boarder he called it round my right lung, all I know is I've been poorly now for a four months not sleeping and my cough is getting worse, plus the weight on my chest, I'm just having to put my trust in my specialist that he will get another CT scan as soon as possible he told me, so I'm hanging on just waiting with what feels like someone sitting on my chest, so I know how you feel this waiting game is no fun. I hope everything turns out well for your husband and I wish you both all the best. X
Sorry Maureen you do seem to be going through a bad time at the moment. I try not to allow myself to worry to much as like I said ealier you can not change anything unless you feel that you are not getting the right help. I can not fault the NHS for the treatment myself and husband have received. I also have the same problems as yourself. I am no expert on Radiotherapy so really do not feel able to comment on your cousins problems except to sympathise, my husband only lost appetite for a few weeks and was falling asleep all the while. If like us your family member has been assigned a Macmillan nurse specialist I would suggest that they phone them to ask advise. I have found them very helpful.
Thank you all for your comments. I hope all goes well for for your family members.x
Thank you Jean let us all know please how you get on xx
Thank you for your reply clematis, yes everyone has been very good to help him but I think he is just in so much pain with such an intensive treatment he is being very bad tempered with everyone trying to help at the moment which I can totally understand it is so horrible, he was so bad during the me a couple of nights ago his wife had to phone for the doctor who gave him morpheme for the pain. since then his wife was telling me his coughing has got so bad that he is starting to pass out but has a sort of fit first with lack of oxygen. I've been trying to phone her all day today with no reply I think they must have taken him back into hospital, we are all worried about him now, although if that's where he is will be in the best place. The Macmillan nurses are excellent they came all the time for my dad several years ago, what s marvellous job they do. Anyway hopefully when everything settles down she will be able to get in touch with them to help if she hasn't already. Sorry it's taken me. so long to reply but I'm having a terrible time with legs cramps from the Cronyn down to me knees at the moment and it the worst pain. I've had them on occasions before but thought it was never going to go, so bad been in years this time. Think I tried to do a bit much yesterday and have suffered in every way possible., must have something to do with my fibro, not sure. Anyway Thank you once again. Hope your husband recovers from this terrible ordeal too. X
We have been given the go ahead to go on holiday on Thursday but we have to see the consultant on Wednesday morning. Not looking forward to it x
Scared 
new developments scared crapless
Being scared.
Scared! 
