Having visited my lung doctor WHERE things ended up NOT to well with regard my treatmeant care and what I term a wishey washey vauge finger up ass diagnosis.
MY own investigations re my immune issues have uncovered few point we should all be aware off ( 1 ) is immunty issues blood works doctors won't routinely check for as the say it as little clinical significants.
Well I seen my lung doctor and we was talking about stuff I was coughing up THAT they totaly dismissed LIKE we don't know when we coughing trying to get stuff up of chest such as mucus or asbestos.
Then we OR I was talking about MONOCYTES anyway he said I would not worry bout them as I have bigger issues with immunty and started talking about pneumonia.
Having had time to reflect calm down I was thinking how lame our lung dieases blood test ARE the don't do full serum blood test and the don't do antibody test nor DNA test GOSH what do GPs do THE synical of us would say nothing THAT on face of it seem accurate.
Anyway all cut right to chases THIS lots on here with a lung dieases and un-diagnosed immunty issues of unknown thingy THAT could be treated and ease your lung dieases symtoms IF only you asked and doctors gp's looked.
Thus far MONOCYTES slightly elevated in my case AND my crappy looking blood could be compounding my lung issues blood that THINGY stuff that don't flow easy AND or could it even be that CVID of unknown thingy that lung doctors gp's don't want to treat look for but only treat end result INFECTIONS
Great article Jeff. I am having immuglobulin therapy and it certainly does help. It has been a rocky ride to get there and I swear had my blood been tested years ago my Copd would not be v severe. So guys and girls get your blood tested for immunity. Have a lovely day all! Love Sheila xx
Hi JAS have made a note of the article for Pete when he goes to Brompton next January. He has sarc and COPD. An immunity blood test could be a good idea.
You take care and good luck to you. Keep up the fight. Xxxxx
Hi Jeff thats a good article about CVID, I already read the lung disease news get it by email, but thanks for link for the forum . It makes you stop and think how many of us could have some immune deficiency, or even allergies we are not aware of. Many Asthmatics are not tested for their triggers or severe allergies, the NHS works very much on "spliters" as mentioned in fact my GP practice
says one thing at a time please.Some of the newer doctors are leaning more towards being"lumpers" and looking towards the wider picture like you think should happen. Most blood tests done here are just the basics unless you have certain more serious or rare illness. Bye for now
Good luck Jeff I also have psoriatic arthritis. That is caused by an overactive immune system. So my respiritary consultant has referred me to see an immunologist. Due to the part of my immune system that fights infections is low. But I have been waiting for ages to be referred. And there is no guarantee that they will see me. So the consultant says.
I have been on immuglobulin therapy for three years. My pulmonary specialist recommended that I see an immunologist and he recommended IV therapy. Every 4 weeks I go to outpatient infusion at the hospital and spend 3 hrs hooked up to an IV.
It's hard to tell if it helps or not. I could be in much worse shape if I didn't have the IV therapy?
I'll be bringing this up at my appt too. Right now I haven't had these yests , no refer all, RA, psoriatic arthritis, a lung lesion and they are thinking about operating on NY lung to figure out what do do to bahe me well. Maybe I'm the experimental candidate, I'm pondering that one.
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