Scary

Hi all am new to the site having just found it. Was diagnosed with mesothelioma last September and after having major operation in November the cancer has returned so chemo starts soon and am a little nervous.  Trying to stay positive and fit before I start.

[Pentreath Volunteer]

Dear Susyone - welcome to this friendly site.  No wonder you are feeling nervous.  Good for you in trying to stay positive and keep fit; that will put you in a 'good place' to start from.  However, let yourself feel scared when it happens - something I found helpful was to give myself a time limit to feel this and then go back to how I was before.  Keep us posted with how you get on - there is a lot of support here.

[Hidden in reply to Pentreath]

Thank you so much for your feedback and advise. So nice to have found this site with support and will keep posting.

[kimmy59]

Welcome to the site. I'm sorry I don't know anything about your condition, but I will keep you in my thoughts. So glad you found us.

Kim xx

[Hidden]

So sorry to read about ya dx. Befoure your opperations did they not talk about immune therapy as way of fighting it. 

[Hidden in reply to Hidden]

Thanks for your input but no one has mentioned immune therapy. What is it please?

[Hidden in reply to Hidden]

If you had asbestos claim accepted insurance companies should fund your immunotherapy treatment.

        mesothelioma.com/blog/autho...

If you dont you need to find consultant that can issue new drugs in development.

Google search should turn up them or drop blf a line 

This 4 in this country north south east west

 

[Hidden in reply to Hidden]

Thank you Jeff for your advise.

[Hidden in reply to Hidden]

Ad ask your doctors eather way LIKE the say if dont ask dont get.

Hope all works out well for you 

[Titchy52]

Hidden  this is a great site praying for you x

[Hidden in reply to Titchy52]

Thank you.

[Hidden in reply to Titchy52]

Thank you appreciate it x

[Suzy6]

Hi Susyone,

Welcome, take your time to digest your news. Cry, swear stamp your feet then build up your positive  attitude. I did when told 13 months ago stage 4 terminal.

Look up Nivolumab it is a newly released drug which your Oncologist can ask for early release for you.

Check if it is for your kind of cancer, wasn't for mine but I have met some people on it with good results.

Alternatively ask if there are any trials that would suit you. I'm on one at the moment.

Here for you.

Love Suzyxxx

Ps ask, question everything and be proactive..

[Hidden in reply to Suzy6]

Hi  Suzy

Thank you so much for your reply it's so nice to get feed back that the feelings I am experience are normal. Have cried am at screaming point now so again thank you.  Susyone x

[Mez29 in reply to Suzy6]

Hi please can you tell me how long you had to wait to get on a trial after referral from your oncologist

Keep positive

[Sheilab123]

Hi Susyone and welcome, you are going through it by the sound of it. It's a great site if you need advice, help, humour or just to let go of frustrations, always someone around. You take care and keep us posted. Xx

[Hidden in reply to Sheilab123]

Thank you Sheila for response really appreciate it. X

[Hidden]

hi susyone , I hope really everything goes ok for you really as meso is one sh~~~~ disease , have you joined the site mesowarriors any one can join with dx of any meso or there familys that way besides BLF  u wil get lots of help and advice of them ,good luck eh .

[Hidden in reply to Hidden]

Thank you will look at that site.

[Hidden]

Hello susyone,

Sounds like you really are going through it, but you aren't alone as you can see..  This is a great forum with members who have, or can find all the right answers to help you.  I wish you all the best of everything for a bright future, and don't forget we are here for you even if we haven't first hand knowledge.  Scream away to us - we are here to offer you support and comfort too. 

xx

[Hidden in reply to Hidden]

Hi Jennifer thank you for your support and yes this does seem a great site for people. X

[Dedalus]

Welcome to the site Susyone.  So good you are trying to stay positive.  Understandable that you're nervous; you have beaten this once and I sincerely hope the chemo will get rid of it this time.  Take care and please keep us updated about your progress.