Morning wonderful friends. Blown away by the love and support from you all. Thank you everyone who’s posted or messaged and special thanks to Ruby who started it off. You have really lifted my mood. Small progress on sick front though I can now walk about 12 tottering baby paces and don’t need help to put my cardigan on and off. Spasm coughing has stopped aided by saline nebs which is wonderful. So there’s progress.
One of main difficulties is impact of reflux in triggering asthma which is dreadful. I always sleep on my left side on wedge pillow but during exacerbation have to be constantly upright on hardish chair and sleep like that too. So little wonder feet swollen like pumpkins and ive got incipient pressure sores.
A distressing thing was the GP insisting I should have amoxicillin as recommended by the emergency centre consultant, when he never talked to me about which ABs I was on and didn’t know id already had course of co-amoxiclav which amoxicillin with an extra ingredient for people who don’t respond to amoxicillin. So she wanted to go with his prescription to give me something weaker than the med that already hadn’t worked. I felt so unheard and willing to take yet more useless ABs. So Rita called her yesterday a.m. and explained it all and she – the GP – said of course I shouldn’t be taking that. So what muddled communication, made worse by GPs sense of themselves as lower in a hierarchy.
Rita has been amazingly stalwart but now she’s got an upper respiratory infection herself and is very sick and exhausted. We’ll have to call in our friends to help. I know just how lucky we are and really feel for those of you who have to struggle along on your own.
I was just one day in the hospital - Friday. They wanted to keep me in for the weekend but when we questioned them they admitted they wouldn’t be doing much more than we could do at home – ie monitoring. So given weekend staffing problems etc we decided it would be safer to come home.
Concentrator brought round by nice young man called Chris who smelt a bit less of aftershave than most of the others. The concentrator burbles away and brings back childhood memories of the cabins we had next to the engine on regular overnight ferry crossings from Liverpool to Belfast.
The respiratory nurse and district nurse trainee are coming today – great, trainees need hands on experience. And I need info about how to maintain O2 levels – at present mostly on 2 ½ litres but for a time after coughing sats plummet and 4 litres wont get them to 88 for about ¾ hour.
Uplifting things: Frasier reruns. Is the hitch-hiking weasel real (eyes, jolyn?). The amazing female snooker player taking on the men and winning.
Daughter coming at weekend, best friend coming from London tomorrow, friends helping with chores. Sun through the window.
I wish you all the best day possible. For all of you who are sick, many more so than me, I hope for improvement. I may manage the odd post otherwise tomorrow or next day for more tales from the sickroom. But for now
“Frazier has left the building” xxx jean
ps just saw lovely post from Argana, thank you. Love to know what ppl are doing xx
Dora: at top