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Pred - side effects

Brenviking profile image
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I am waiting to be started on xolair and then mepolzumab. I have been on prednisilone since Aug 2015 - I estimate that over that period of time I have been on around 25mg per day.

Has anybody suffered side effects on a similar dosage and period of time? I have put on some weight but that is partly down to me not been able to exercise like I used to.

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Brenviking profile image
Brenviking
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shirl13 profile image
shirl13

I have been on pred since 1991 constantly. My maintenance dose now is 20mg but obviously that changes with how I am. I have put on weight, have thinning skin, muscle wastage, am now diabetic, have osteoporosis, reflux to name a few lol. Every time I have something wrong with me I am met with "it's the steroids" - am thinking of putting it on my headstone. Jokes and worries aside, if I hadn't taken the pred I would be 6 foot under. Good luck, if you can get your asthma under control try gradually titrating steroids down. Prior to being on them 24/7 it took me 2 years to get down from 20mg+ to zero but that was many years ago when I was young and fit. Presently when I raise pred I titrate down 5mg every 5 - 7 days till I get down to 25mg, then take it 1mg at a time from there until I get back to 20mg (do try and get under this but end up with flare up and am back to square one)

Griffon profile image
Griffon

There are serious side affects associated with steroid use - suggest you google it , and keep their use to a minimum !

Brenviking profile image
Brenviking in reply toGriffon

I would prefer not to take them at all - but they are keeping me alive.

Griffon profile image
Griffon in reply toBrenviking

Then you are between a rock and a hard place -

MikeWhite profile image
MikeWhite

I now have adrenal suppression / / thyroid / testosterone issues and just been told diabetes - all likely due to long term steroid use but as you say we really do not face a choice in taking pred when we are poorly as Bren Viking states.

Since being on xolair I only use pred for flare ups maybe 3 times a year and manage to get off it completely over the summer.

Currently admitted to RBH and start the 40mg pred regime today when they swap from IV hydrocortisone.

Mike

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