Asthma getting me down.

[Dasroots]

I've had asthma almost all my life. I'm currently under the care of the royal Brompton hospital. I have been under them since I was a teenager. I'm 27. So around 13years now. I'm on nebulisers, pred, fexofinadine, fluitform. I had an attack a few weeks ago and ended up in my local hospital the care I received wasn't great so I discharged myself as soon as I was off of IV's. I went for a review at Rbh on Thursday and they said they think it's infection causing my asthma told me to stay on the increased dose of pred and prescribed more antibiotics. Despite being on high dose pred I'm not really feeling any better. Still really breathless when I do anything. I'm not due to be seen at Rbh until September I have physiotherapy at the end of the month for chest clearance and exercise tolerance.

I'm just feeling so fed up with it. Asthma is ruining my life. I'm just so uncomfortably breathless all the time. I really don't see away forward. I've tried xolair, theophylline, montelukast all the treatments and they make very little difference. I'm tired of physio and nebulisers. I do it and I still get sick. It's draining.

I also have mental health problems and I find it difficult to care for myself. The worse my mental health is the more it impacts my physical health and visa versa. I'm also diabetic there not sure if I'm type 1 or steroid induced so I'm treated as type 1 I find that difficult and the more steroids I'm on the more my diabetes goes up the spout. I just really struggle to look after my long term physical health conditions. I'm not even sure what care to expect. I see my GP regularly normally every two weeks but that is more focused around my mental health. The asthma nurse at the practice won't see me as I'm too complex. I just feel under supported with my asthma.

Any idea what I could do? I thought of sending my consultant at Rbh an email with my concerns of things don't settle down. It's just really getting to me.

[yaf_user681_61477]

hi dasroots, sorry to hear of your suffering i know only to well what you're going through. but you never know in a weeks time you might be feeling better asthma is weird like that so keep your chin up. have you tried speaking to one of the asthma nurses through this site? they are more understanding than most healthcare professionals. i've always found being asthmatic a lonely experience because you cant see it in other people so it feels like you're the only one whose got it and everyone else is normal. maybe we should all wear badges so we can stop each other and talk about it with someone who knos where we're coming from. The number for the asthma nurses is at the top of the screen

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[cconsta1]

Hi nnI have had asthma for about 13 years (I'm 29) and over the last 6 months it's completely taken over. Before I would have episodes and I always knew I had it but I worked 2 jobs, danced went for runs and probably 70 percent of the time could do this long as I took all my medication. I averaged on maybe 3 emergency admissions a year but I always bounced back. nNow I haven't worked for 4 months (Im an English teacher and youth worker and the local authority occupational health have said in currently not medically fit to work), haven't danced for 6 months and have been admitted to hospital 8 times in 5 months. nAnyway I'm getting carried away, what I'm trying to say although I'm not anywhere near as bad I know the feelings of isolation and how down it can make you when you're ill and can barely walk up the stairs. People really don't understand. And it gets frustrating, if I had other better understood illnesses i don't think people would be as dismissive. And even those who do care still don't quite get it and are over protective in some ways but then kind of not in others when you feel you need a little bit of caring for. It's hard, I've always been fiercely independent. I hate relying on others and I hate others seeing me ill. nErgh I'm so sorry this is turning into me whinging. What I'm trying to say is please know you aren't alone. nX

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